Biography

Name

Chaz Hayden

Nickname

chaz-hayden

Gender

Male

Relationship

Patient

Short Bio

Chaz Hayden is a debut author who, like his main character, was diagnosed with spinal muscular atrophy as an infant and spent his childhood in and out of hospitals. The First Thing About You, he says, is “not just about disability but about friendship and love and all the things that a young person hopes to experience.” Through his writing and his YouTube channel, he speaks with abundant positivity and encourages people to “Be different. Leave a trail.” Chaz Hayden grew up in New Jersey and now lives in Pennsylvania, where he spends too much time thinking about his next tattoo and what concerts to attend. Follow him on Instagram and Twitter @TheChazHayden.

SMA Type

Type I

How long have you or the person that you are caring for had SMA?

I was diagnosed when I was 3 months

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