SMA News Today Forums | jojo-jonsson | Activity https://smanewstoday.com/forums/members/tigerjojo/activity/ Activity feed for jojo-jonsson. Sat, 18 Apr 2026 20:06:21 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 088f6b8ffd80b103f8c166531d62221e jojo-jonsson replied to the discussion Do you hide your challenges? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-hide-your-challenges/#post-30944 Wed, 24 May 2023 00:49:39 -0500 Reply to Do you hide your challenges?

I think choosing the moments to let people in. Then maybe through a blog or insta or Yt like you to show more and more, as long as it feels comfortable of course.
Also to speak about why we don’t share maybe.

]]> c6473604977ec3d7389f95763384c575 jojo-jonsson replied to the discussion Do you hide your challenges? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-hide-your-challenges/#post-30943 Wed, 24 May 2023 00:26:57 -0500 Reply to Do you hide your challenges?

I used to be that way when I was younger and healthier than I am today(47). I usually didn’t have any helpers so if I needed help with anything I asked someone close by. Good thing.
Nowadays the help I usually need is too advanced or special to let just anyone help and I have speech problems. It’s all about what and where. If it’s an… Read more

]]> baad23703ea34ab9d459ce345a743235 jojo-jonsson replied to the discussion Do you hide your challenges? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-hide-your-challenges/#post-30856 Fri, 28 Apr 2023 23:52:11 -0500 Reply to Do you hide your challenges?

I do that too. All the time. Keep putting my own needs away for the sake of being a part of things.
I’ve noticed that when I don’t people don’t really wanna hang out with me. For what reason I don’t know. Probably because everything will be a little more complicated and difficult.
And I also think that it’s a bad thing cos as I’m not the real… Read more

]]> b82465ea814c0ccd833102928a37934c jojo-jonsson replied to the discussion Do You Take a Contraceptive to Stop Your Periods? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-take-a-contraceptive-to-stop-your-periods/#post-30496 Sun, 08 Jan 2023 20:39:15 -0600 Reply to Do You Take a Contraceptive to Stop Your Periods?

Me too…

]]> 08c527884dae28a44a6b063ab8957ca3 jojo-jonsson joined the group SMA Patients https://smanewstoday.com/forums/activity/p/15902/ Tue, 06 Dec 2022 18:46:26 -0600 0 c14906373a6cfb63a784fe36ede21c99 JoJo Jonsson changed their profile picture https://smanewstoday.com/forums/activity/p/15901/ Tue, 06 Dec 2022 18:32:55 -0600 0 ae878d40735abba917234460deaff39d jojo-jonsson posted a new activity comment https://smanewstoday.com/forums/activity/p/15866/#acomment-15900 Tue, 06 Dec 2022 18:23:30 -0600 Hi Alyssa
Thank you 😊. Finally found my way here. I’m working on some form of introduction. Looking forward to more contacts and finding both help and support.
I follow you on Instagram btw. 😃

In reply to - jojo-jonsson became a registered member ]]> 3f57bcba90d991b8f344d21898c67f79 jojo-jonsson became a registered member https://smanewstoday.com/forums/activity/p/15866/ Mon, 05 Dec 2022 14:48:38 -0600 2