This topic contains 0 replies, has 1 voice, and was last updated by  DeAnn R 2 weeks, 2 days ago.

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     DeAnn R 
    Keymaster

    Hello everyone.  As of today I will be moderating the Spinraza forum.  Here is the place to post anything and everything Spinraza related.  Have questions or concerns?  Please ask.  I along with the SMA community will do our best to answer.  Have a story to share?  Please do.  The more stories we share, the more familiar we’ll become with this new (relatively speaking) and fascinating treatment.  Just to start I’ll share I’m 38 years old, type 2 SMA and have received 4 loading doses of Spinraza.  Treatments are going well despite my age and the challenges a spinal fusion added to the procedure.  What challenges have you faced? 

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