• Spinraza (nusinersen)

  Welcome!

  Posted by kevin-schaefer on January 3, 2018 at 11:59 am

  Welcome! This is a public forum designed to discuss information and questions related to the drug Spinraza, which is the first FDA-approved treatment for Spinal Muscular Atrophy. Whether you or someone you know has started receiving Spinraza or you just want to learn more about it, this is the place for you. I also want to extend a special invitation to medical professionals and researchers to come here and help us provide the most accurate information.

  Feel free to ask questions here, share experiences related to treatment and/or clinical trials or share reservations you may have about starting this process. Your perspective is welcome and I want to thank you for joining the discussion here.

  kevin-schaefer replied 6 years, 3 months ago 1 Member · 0 Replies
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