Grandfather’s Goal: Finding a Cure for SMA


In this WXYZ-TV Detroit video shared in May 2015, we catch up with Stephen Clark and his adorable granddaughter Scarlet who was diagnosed with type 2 spinal muscular atrophy when she was 10 months old.

Meet the Kingsley family and 6-year-old Brett who was diagnosed with spinal muscular atrophy (SMA) type 1 when he was just a baby.

Stephen talks to pediatric neurologist Dr. Harold Finkle about clinical trials that are currently underway and how long it might take before a possible cure is found.  In addition, we meet Jace who is a candidate for human trials to test a technique that someday might repair the faulty gene responsible for SMA.

Read how little Reagan’s stem cell treatment for SMA is bringing hope to her family.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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