Living With SMA in Junior High School

This film, directed by Jeremy Ryan Carr and shared in 2013, is about Bryce. Bryce was diagnosed with SMA at the age of 15 months and his parents, Kelly and Dan, were told it was unlikely that Bryce would live beyond his second birthday.

Watch the story of Philly, a nine-year-old boy living with spinal muscular atrophy. 

Bryce is now in middle school and this short documentary shows what it’s like to care for a child with spinal muscular atrophy and what it’s like to live with the condition. Sports-loving Bryce plays basketball and hockey in his wheelchair with his dad, but admits that he often feels frustrated at not being able to play sports with other kids his age. More than anything in the world, he would like a cure for SMA so that he can walk.

Charity helps SMA teen to play video games with his friends.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

 

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