In this video from BettyLou Ross, we meet some families with a child that has spinal muscular atrophy (SMA). The families talk about living with SMA and their hopes for the future, like being able to live independently, have a career, and ultimately see a cure which would eradicate the disease.
The families speak about their original diagnosis, the prognosis they faced and how much treatment and technology has advanced in the field of spinal muscular atrophy over the years, giving them a better quality of life. They talk about the progress of clinical trials and how they expect research to continue to advance and improve their lives.
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