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SMA Families Talk About Their Hopes for the Future


In this video from BettyLou Ross, we meet some families with a child that has spinal muscular atrophy (SMA). The families talk about living with SMA and their hopes for the future, like being able to live independently, have a career, and ultimately see a cure which would eradicate the disease.

Read about five experimental therapies for SMA you might find interesting

The families speak about their original diagnosis, the prognosis they faced and how much treatment and technology has advanced in the field of spinal muscular atrophy over the years, giving them a better quality of life. They talk about the progress of clinical trials and how they expect research to continue to advance and improve their lives.

Find out about Cameron’s progress in a clinical trial for nusinersen. 

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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