Subscribe to our mailing list

Get regular updates delivered to your email box.
Thank you for subscribing!

SMA Stories: Meet Stella Bartlett


Stella Bartlett is a little girl from Toronto, who was diagnosed with type 2 spinal muscular atrophy when she was just a baby. The gutsy 7-year-old is grabbing life by the horns, attending school and listening to her favorite music by artists like Taylor Swift, Katie Perry and One Direction.

MORE: Seven support areas that can help patients with SMA.

Stella’s parents, Myles and Sarah, have documented Stella’s journey with SMA in a blog, This is Stella. As well as beautiful photographs covering the family’s happy occasions, the blog also shows the harsh reality of SMA, including many of Stella’s hospital stays.

The family is very active in the SMA community, regularly hosting events for SMA Canada and raising money to buy Stella a motorized wheelchair and to get her on the new groundbreaking SMA drug Spinraza.

MORE: Canadian families still waiting for Spinraza approval.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *