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Enter SMA

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When we had our daughter, Ruby, like many first-time parents, we had so many dreams for her. And they all involved her exploring the world, finding what she loves to do, and learning all she can about it. Enter SMA. When you get a diagnosis like…

Chore Time With SMA

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I like to think that we are a well-oiled machine in our house every morning, but I may be delusional. Every morning is started with the best intentions, which quickly evaporate into controlled chaos, and ultimately ends with a sprint through the door, praying we didn’t forget anything.

SMA and Staring

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Anyone with a disability can tell you that staring comes with the territory. This was a lesson we learned soon after we were told that our 20-month-old son, Logan, had Type II SMA. Before we received this life-changing diagnosis, the only looks we’d get were smiles in response…

Getting Involved in High School With SMA

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The night before my first day of high school, I laid in bed wide awake, the butterflies in my stomach fluttering as I pondered what my life for the next four years would be like. I remember having to turn on a movie to distract myself from my…