BiPAP

February 13, 2019February 12, 2019

Ella’s Smooth Clinic Appointment

Columns, Five Servings of Strength- a column by Michael Casten

An early morning rain lent itself to the Chicago traffic. The highway was backed up for miles and we had an hour to get to Ella’s Muscular Dystrophy Association ... Read more

March 19, 2018March 16, 2018

Possibility of Straighter Teeth Brings Risks of Surgery

Columns, The Wolf Finally Frees Itself - a column by Brianna Albers

You know how sometimes a comment can stick with you? That’s been my life this past week. It was something my dad said a while back. I don’t even ... Read more

September 20, 2017September 19, 2017

Machines are Just One Part of Caregiving — 24/7/365

Columns, Five Servings of Strength- a column by Michael Casten

Our nights are broken up by machines beeping, or Ella calling for us to reposition her as she sleeps. Having a child with SMA means interrupted sleep is par ... Read more

July 27, 2017August 18, 2017image

7 Pieces of Respiratory Equipment Needed for a Child With SMA

Spinal muscular atrophy (SMA) is a genetic disease where, over time, the muscles become weakened. In cases of SMA type 1 and SMA type 2, weakened chest muscles affect the ... Read more

July 24, 2017September 12, 2017image

Caring for a Child With SMA When They Have a Cold

According to Cure SMA, there are several areas of care that need to be taken into consideration when looking after a child with spinal muscular atrophy (SMA) when they have ... Read more

April 28, 2017image

What Are the Special Breathing Needs of Children With SMA Type I?

Children with spinal muscular atrophy type 1 will experience breathing difficulties and will require a personalized respiratory care plan. There are interventions that can help make breathing easier for infants ... Read more

March 30, 2017March 30, 2017image

11 Function and Mobility Aids for Children With SMA

As a child’s spinal muscular atrophy (SMA) progresses, they may need special equipment to help make life easier for them and their caregivers. Function and mobility aids can help ... Read more

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