SMA experts and patient representatives concede they have a long way to go in updating a consensus document on SMA standards of care.
Their report, which recently appeared in the journal Neuromuscular ... Read more
A recent study identified several key health-related factors as the most concerning issues for both patients/families and healthcare professionals that deal with Spinal Muscular Atrophy. The study, entitled “Assessing the Needs ... Read more
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