nutrition

September 17, 2018September 19, 2018

Polish Nutritionist Stresses Importance of Proper Diet in Managing SMA

News

Parents of children with spinal muscular atrophy (SMA) — as well as doctors — often don’t give enough importance to the role good nutrition plays in improving patients’ quality of life, ... Read more

July 31, 2018August 10, 2018

Sugar, Fats, and Protein: The Evolution of My Diet

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

As a child of the mid-1990s and early 2000s, I still remember when Saturday morning cartoons were still a thing. Every Saturday of my childhood consisted of my parents ... Read more

May 16, 2018July 6, 2018

Patients with SMA Types 2 and 3 at Risk of Malnutrition, Altered Metabolism, Study Reports

News

Patients with spinal muscular atrophy (SMA) types 2 and 3 are at risk of malnutrition, altered metabolic rates, and changes in body composition, a study reports. The study, “Comprehensive ... Read more

September 13, 2017September 12, 2017

Adjusting to Overnight Feeding and More Solid Foods

Columns, Five Servings of Strength- a column by Michael Casten

Ella has lost five pounds over the past month, which has been the result of a dietary change. Before this change, she was primarily getting her nutrition via G-tube, ... Read more

April 27, 2017September 5, 2017image

Cure SMA Releases Care Booklet to Help With Nutritional Needs

Cure SMA has launched a series of care booklets covering a wide range of topics for SMA patients and caregivers. Their “Nutrition Basics” booklet can be downloaded as a ... Read more

April 20, 2017image

5 Areas That Need to Be Carefully Cared For When You Have SMA

A patient with spinal muscular atrophy (SMA) will need a multidisciplinary approach to their medical management. Babies and children with type 1 and type 2 SMA may need help ... Read more

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