In this episode of the Morale Monologue, I’m sharing an email that I received from one of my subscribers to my personal YouTube channel. My subscriber asked how I continue to remain optimistic while living with SMA. I give her my reasons regarding my optimism and enthusiasm, and I’m sharing this with you in the hopes that it will brighten your day and give you something to look forward to.

Hope you all enjoy this video! If you haven't already, please subscribe to the SMA News Today YouTube channel. We'd greatly appreciate it.

Do you have any takeaways from this video? How do you remain optimistic despite living with SMA?

In this episode of the Morale Monologue, I’m sharing a video that I did for my physical therapist, Emily. Currently, Emily and I are working on a series of articles and videos for the SMA News Today HCP site. This healthcare professional website is designed for physical therapists, doctors, and anyone in the medical field.

This series deals with physical therapy and patients who have SMA. About three or four times a year, Emily gets physical therapy students. These are students who are completing their doctorates of physical therapy, or their physical therapy assistant (PTA) certifications. These six-week rotations allow these students to work with a wide range of patients, in both an outpatient and inpatient clinical setting.

When students work with me, I get a chance to explain what SMA is and how it affects me. Plus, these students feel more comfortable if and when they get a chance to work with another SMA patient after they graduate.

Hope you all enjoy this video! If you haven't already, please subscribe to the SMA News Today YouTube channel. We'd greatly appreciate it.

Do you have any takeaways from this video? Do you have any questions for me about physical therapy?

In this episode of the Morale Monologue, I’m sharing my opinions that I gave to one of my subscribers to my personal YouTube channel. This person was having issues with a doctor, and I wanted to address these issues.


I did a video a while back about how my doctor gave me permission to take physical therapy. One of my subscribers talked to her doctor, but had a bad experience when she brought up this topic. She asked me for my opinions as to what I would do, and I’m sharing these opinions with you. Hopefully, this may help you if you encounter the same problems with your doctor.

Check out the latest episode of Dose of DeAnn here. I really can't stand fall and winter, as these seasons force me to hibernate. However, I try to take advantage of fall days that aren't too cold for me.

In this video, I show viewers what one of these days looks like. My Mom and I went for beer and pizza on a sunny afternoon, and I documented our outing for this video. Hope you all enjoy!

Thanks for watching, and please subscribe to the SMA News Today YouTube channel. We'd greatly appreciate it.

Do you have any takeaways from this video? Do you have any fall/winter plans?

In this episode, I talk about the importance of trying new things. When you have SMA, or any disability, trying something new can often be challenging. It may seem like it's not worth the effort, but I want to encourage viewers to just go for it.

For my "new thing," I decided to get a manicure for my 40th birthday. Like many other aspects of my life, I had to work out the logistics to make this happen. But I did it! I show some of the process in this video, and I show viewers what my nails looked like after the manicure.

Hope you all enjoy this video, and let me know your thoughts! Also, please subscribe to the SMA News Today YouTube channel if you haven't already. Thanks for watching!

Is there something new you want to try? If so, what is it?

Happy Tuesday everyone! Hope you all had a great weekend.

Check out the latest episode of Dose of DeAnn here. In light of SMA awareness month, SMA News Today has been doing an initiative called "31 Days of SMA." This is a collection of stories, all written by people in the SMA community. There are stories about employment, relationships, accessible travel, physical therapy, and more. You can view all of these stories on our Instagram page - https://www.instagram.com/smanewstoday/

I discuss some of these stories here, and I share how this project has changed my perspective on awareness month. Hope you all enjoy watching! And please subscribe to our YouTube channel if you haven't already.

Do you have any favorite 31 Days of SMA stories?

Check out the latest episode of Ryan's Robotics here. I talk about the Dynamic Arm Support, which is another device that Kinova Robotics makes. A Kinova rep spoke with me, and did a full demonstration of this device. It's something that a lot of people here might find useful.

Hope you all enjoy this video! If you haven't already, please subscribe to the SMA News Today YouTube channel. We'd greatly appreciate it.

Do you have any questions about the Kinova arm support?

Check out my latest video here. In this episode, I talk about what I've been doing this summer. This was my first full summer with my JACO, and the arm proved to be especially useful at my cousin's wedding. Watch the video to see why.

This episode is short and sweet, and I hope you all enjoy it! Let me know your thoughts, and please subscribe to our YouTube channel. Thanks for watching!

Join the SMA Forums: https://smanewstoday.com/forums/
Like our Facebook page: https://www.facebook.com/SMAnewstoday/

In the seventh episode of “Ryan’s Robotics,” Ryan Berhar talks about some of the other assistive technologies he uses, besides his JACO robotic arm.

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Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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