SMA News Today Forums | isaura-santos | Activity https://smanewstoday.com/forums/members/isaura-santos/activity/ Activity feed for isaura-santos. Mon, 13 Apr 2026 16:22:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 5679bc17cd16e73da1008d2017ead312 isaura-santos and kevin-schaefer are now connected https://smanewstoday.com/forums/activity/p/1777/ Mon, 16 Jul 2018 20:28:36 -0500 0 b7442d297472553bdd5117c0bddf8f98 isaura-santos started the discussion Educational Video (SMN1 and SMN2 genes) in the forum Raising Awareness of SMA https://smanewstoday.com/forums/forums/topic/educational-video-smn1-smn2-genes/ Thu, 12 Jul 2018 17:22:00 -0500 Educational Video (SMN1 and SMN2 genes)

This is a great video to understand gene expression in SMA! Good to share with friends who want to know more about SMA.

 

]]> 2b4221d2162ccf0c2fb0b885ba4694b5 isaura-santos started the discussion ‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/life-atrophy-documentary-young-boys-journey-spinraza/ Wed, 04 Jul 2018 17:15:54 -0500 ‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza


“Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon became aware of ongoing clinical trials that were studying a breakthrough drug that might change the lives of those who have the disease. As a filmmaker, Burghes knew that he wanted to… Read more

]]> 49fdbfad82f7b63f72e3bcf09d43dcfd isaura-santos updated their profile https://smanewstoday.com/forums/activity/p/1419/ Mon, 18 Jun 2018 12:45:56 -0500 0 e69833c33db9dd366d8a15bca0f2e34f isaura-santos and deann-r are now connected https://smanewstoday.com/forums/activity/p/1386/ Wed, 13 Jun 2018 12:42:47 -0500 0 7bd2e4b61e45ac419264e0ff80505d98 isaura-santos updated their profile https://smanewstoday.com/forums/activity/p/1385/ Wed, 13 Jun 2018 12:41:11 -0500 0 946f41c215b92fd12f1a414e5a134ea7 Isaura Santos changed their profile picture https://smanewstoday.com/forums/activity/p/1384/ Wed, 13 Jun 2018 12:40:29 -0500 0 a0f34c278e963c0ce9713917c8aa988f isaura-santos replied to the discussion in the forum https://smanewstoday.com/forums/topic/music-movies-tv-shows-books/#post-11649 Tue, 17 Apr 2018 19:14:58 -0500 Reply to

Hey! Thanks, Kevin! I’m emailing her 🙂

]]> bc6ae714cea2c26a6745dd300102acc4 isaura-santos replied to the discussion Disability in Pop-Culture in the forum Raising Awareness of SMA https://smanewstoday.com/forums/topic/disability-pop-culture/#post-11643 Tue, 17 Apr 2018 17:29:31 -0500 Reply to Disability in Pop-Culture

Hey guys! I just created a topic for Music, Movies, TV Shows and Books since I found so many people asking for references! Feel free to stop by 🙂

https://smanewstoday.com/forums/topic/music-movies-tv-shows-books/

]]> db54aaedb235dbe0ae5efca0ada5c705 isaura-santos started the discussion in the forum Raising Awareness of SMA https://smanewstoday.com/forums/topic/music-movies-tv-shows-books/ Tue, 17 Apr 2018 17:15:09 -0500 Hi everyone! Someone left this comment in a news article:

“There is a movie on Netflix about a boy with sma that gets a new care taker and the care taker takes the boy to all the places that he’s always wanted to go.. the biggest cow, the grand canyon etc. I just cant remember the name of the movie does anyone know?”

Do you guys know so I can… Read more

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