I definitely have felt the way you do,  but I have also felt like I was left behind because of my SMA.  Back in the ’90s, I worked hard to get into a top law school. I personally found law school grueling and hyper-competitive, but I pushed through, graduated, and passed the bar   I  worked so hard to get a job.   I looked good on paper and got… Read more

In movies about protagonists with acquired disabilities (the predominant Hollywood disability type,) it seems like there are always scenes showing the character briefly strutting before the injury or walking in a dream sequence.  I wonder if those scenes are deliberate to avoid the possibility of a disabled actor.  The first rule of screenplay… Read more

Hi,

I am a health policy and economic professional who has Type 2, and there may be a financial reason for choosing the Zolgensma trial, especially if your daughter has private health insurance.  The Zolgensma trial on which the FDA application is based only had 15 Type 1 subjects receiving treatment.  I’ve never heard of such a small number… Read more

You cannot purchase private health insurance when you are on Medicaid.  That has been the law for decades. If you are you are a dependant on your parent’s income taxes, most employer-sponsored health insurance plans allow adult disabled children to stay on their parent’s policy so long as they are tax dependents.  The tax code has an age… Read more

I was not able to use a Hoyer lift. My legs pushed on my stomach, which left me short of breath if I had an asthma attack or illness. I also didn’t have the neck control to use it without the headrest, but I had a terrifying experience where the headrest forced me into a closed airway position and I couldn’t get out of it until I completed… Read more

Wow. Maybe it’s just me. But, Amazon reviewers talk about this problem a lot. I only developed the ear problem in my 30’s. I developed the sweat problem as soon as I began using memory foam toppers.

How do you use this to protect your ear in a full side-lying position? The video says to start with the patient on his back, but I can’t do that.