SMA News Today Forums | lisa-karczewski | Activity https://smanewstoday.com/forums/members/lisanicole/activity/ Activity feed for lisa-karczewski. Thu, 16 Apr 2026 20:45:16 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 b42427e03dca69b8d035b3c1faa96c56 lisa-karczewski replied to the discussion Do you take anything for some extra strength and energy throughout the day? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-take-anything-for-some-extra-strength-and-energy-throughout-the-day/#post-31985 Thu, 11 Apr 2024 21:23:27 -0500 Reply to Do you take anything for some extra strength and energy throughout the day?

Thank you, Mike for telling us about this medication. I have been getting Spinraza since about 2018 as well. I just spoke to my neurologist and he said that he would be open to trying this additional med with me. I see him at the end of this month so we will talk about it more then. He did say one of the side effects is the dreaded diarrhea.…

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]]> 2b4608a9c7b5d962ee1fbdc1e33c8a67 lisa-karczewski replied to the discussion Do you take anything for some extra strength and energy throughout the day? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-take-anything-for-some-extra-strength-and-energy-throughout-the-day/#post-31966 Tue, 09 Apr 2024 00:06:04 -0500 Reply to Do you take anything for some extra strength and energy throughout the day?

https://smanewstoday.com/mestinon-pyridostigmine-bromide/

smanewstoday.com

Mestinon (Pyridostigmine Bromide) – SMA News Today

*** SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always … Continue reading

]]> a8ca4f569d779fec17fe5b02f0727667 lisa-karczewski replied to the discussion Do you take anything for some extra strength and energy throughout the day? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/do-you-take-anything-for-some-extra-strength-and-energy-throughout-the-day/#post-31964 Tue, 09 Apr 2024 00:03:35 -0500 Reply to Do you take anything for some extra strength and energy throughout the day?

https://academic.oup.com/braincomms/article/5/1/fcac324/6884168

academic.oup.com

Randomized double-blind placebo-controlled crossover trial with pyridostigmine in spinal muscular atrophy types 2–4

Stam et al. report on the placebo-controlled, double-blind, cross-over trial in 35 patients with spinal muscular atrophy types 2–4 to investigate the safet

]]> 0c754e46b439f3d7a5be9e9f75c1e03d lisa-karczewski replied to the discussion How do you create happiness in your everyday mundane? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/how-do-you-create-happiness-in-your-everyday-mundane/#post-30769 Thu, 30 Mar 2023 02:40:07 -0500 Reply to How do you create happiness in your everyday mundane?

How do people manage happiness when they have no family to help them out?

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