SMA News Today Forums | mehdi | Activity https://smanewstoday.com/forums/members/mehdi/activity/ Activity feed for mehdi. Sat, 25 Apr 2026 13:40:50 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 63c18a4150ecfb1a97d3ae3648eebf8d mehdi and lupa-f are now connected https://smanewstoday.com/forums/activity/p/14671/ Tue, 01 Feb 2022 15:57:26 -0600 0 80159e0bb69e61a77ca700ad6f800241 mehdi started the discussion The deadly Spiranza price in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/the-deadly-spiranza-price/ Wed, 24 Jul 2019 23:23:35 -0500 The deadly Spiranza price

The consumer defense association Test-Achats (Belgium) announced Wednesday the filing of a complaint against the pharmaceutical company Biogen before the Belgian Competition Authority. It denounces an abuse of a dominant position in the marketing, at a price considered exorbitant, Spinraza, a drug against spinal muscular atrophy, a rare… Read more

]]> 9480d7f01c5d813280e558b81a2853f5 mehdi replied to the discussion Spinraza Dose #8: Another Successful Maintenance Dose in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/spinraza-dose-8-another-successful-maintenance-dose/#post-19001 Thu, 23 May 2019 14:55:54 -0500 Reply to Spinraza Dose #8: Another Successful Maintenance Dose

Which improvement do you feel ?

]]> 97aab094f608192a91a7188d84a8f200 mehdi replied to the discussion SPINRAZA FOR FOREIGNER in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/spinraza-for-foreigner/#post-18516 Wed, 24 Apr 2019 18:03:18 -0500 Reply to SPINRAZA FOR FOREIGNER

thank you

I agree with you Lupa. Spiranza price is unethically high ” maybe it’s theft or murder !!! …” there is one SMA for each 10 000 person so the campany can  earn about 22.901.200.000 Dollar just in USA that’s unfair even if injections are literally ongoing for life (RYAN). At this price we can build factories , hosptals or… Read more

]]> 8da516e83dfc333452275b084b2de0f3 mehdi posted a new activity comment https://smanewstoday.com/forums/activity/p/5860/ Tue, 23 Apr 2019 09:37:45 -0500 Great

i added you on facebook

    ]]>     1     2d7d2df905ee30e18edbc128fe5b38f1 mehdi replied to the discussion SPINRAZA FOR FOREIGNER in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/spinraza-for-foreigner/#post-18477 Tue, 23 Apr 2019 09:33:55 -0500 Reply to SPINRAZA FOR FOREIGNER

    Thank you guys

    Rayan Iam very sad for your bad experience with Biogen. Unfortunately Spiranza is the unique hope For SMA patients.

    Do you know why the price is horribly expensive ?

     

     

    ]]>         3e7d0c08762f7fa9eac3763de8eaf408 mehdi posted a new activity comment https://smanewstoday.com/forums/activity/p/5848/ Mon, 22 Apr 2019 15:36:06 -0500 Dear Kevin

    thank you for your prompt attention to this matter

    Well I’m MEHDI a SMA 2 senior ( 29 years old lol) from Morocco. I want to get Spiranza however the cost is unethically hign. I’am ready to pay the first dose but I can’t buy the other injections.

    Besides, I like to watch soccer, hearing good music, playing chess annd somtimes… Read more

    ]]>     1     c1db4311a12e1871f0cdb5b7bc47bd64 mehdi joined the group SMA Patients https://smanewstoday.com/forums/activity/p/5843/ Sun, 21 Apr 2019 19:23:08 -0500 0 2fc6570b7d0b3ee6ac9d583b38f8a5a8 mehdi replied to the discussion SPINRAZA FOR FOREIGNER in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/spinraza-for-foreigner/#post-18444 Sun, 21 Apr 2019 16:37:39 -0500 Reply to SPINRAZA FOR FOREIGNER

    Hi DEANN,

    many thanks for your pretty advices. I work on finance topics ( you can see my articles on the Net).

    Well I hope to  hit the pause button of SMA monster. but the expensive price of Spiranza is real obstacle. I think the unjustified and inhuman price should be negotiated.

    Best wishes,

    ]]>         7b7bb22b84e2e88bf0d8d721ef0fb4a0 mehdi started the discussion SPINRAZA FOR FOREIGNER in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/spinraza-for-foreigner/ Sat, 20 Apr 2019 21:01:26 -0500 SPINRAZA FOR FOREIGNER

    Dear Friends

    I’m Mehdi SMA 2 From Morocco 30 years old. I’m PHD student. I’m so happy  to Talk to SMA Community.

    Unfortunately my disease evolved this last year which jeopardizes my health and my professional career.

    So Could you reply to my questions “which hospitals or associations offer Spiranza at low cost? is there a discount for low… Read more

    ]]>         63b6bb02f7a422ccf0b426b135903bef mehdi became a registered member https://smanewstoday.com/forums/activity/p/5838/ Sat, 20 Apr 2019 14:43:33 -0500 1