Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
The consumer defense association Test-Achats (Belgium) announced Wednesday the filing of a complaint against the pharmaceutical company Biogen before the Belgian Competition Authority. It denounces an abuse of a dominant position in the marketing, at a price considered exorbitant, Spinraza, a drug against spinal muscular atrophy, a rare and serious disease that mainly affects children. Test-Achats shows a gap of nearly $ 2 billion between development costs and revenues. In two years, Spinraza sales reached $ 2.61 billion for an investment of $ 648 million. Each dollar invested has brought in four times more, she says. Test-Achats sees in this case a new illustration of “unsustainable prices” practiced by the pharmaceutical industry, which can no longer be justified, according to her, by the protection of investments in research and development
Thanks for sharing Mehdi. Unfortunately the article link is in French, so I couldn’t read it, but I do agree the price of Spinraza is exorbitant. My hope is that as more drugs enter the market it will create competition and drive prices down.
Viewing 1 reply thread
You must be logged in to reply to this topic.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.