SMA News Today Forums | PJ5 | Activity https://smanewstoday.com/forums/members/pj5/activity/ Activity feed for PJ5. Wed, 08 Apr 2026 03:24:42 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4b0d9b59c001fb852acf35c3bed43be0 PJ5 replied to the discussion An open invitation to vent about lost abilities in the forum Diagnosis​ Info ​and​ ​General​ ​Questions https://smanewstoday.com/forums/forums/topic/an-open-invitation-to-vent-about-lost-abilities/#post-33019 Fri, 15 Aug 2025 04:26:28 -0500 Reply to An open invitation to vent about lost abilities

Hi Everyone

Living with SMA while growing older feels like I’m forever caught between two narratives that refuse to overlap. Not so much a vent, but just to share of the disappointments and difficulties withe having SMA and then ageing… I have particularly noticed that those who have you for a fair amount of time, don’t seem to make allowances…

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]]> a307eb624dea0c6d4948e44ef700e291 PJ5 replied to the discussion Adults age 50 and older in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/adults-age-50-and-older/#post-32567 Wed, 29 Jan 2025 01:57:32 -0600 Reply to Adults age 50 and older

Hi Robin

Happy to be a part of this group. I‘m 71 with type 3b.

Where’s the sign up please?

Cheers John S

]]> 4f94b74b40c431ba226c92725ef9919d PJ5 posted a new activity comment https://smanewstoday.com/forums/activity/p/18977/#acomment-18983 Sun, 22 Dec 2024 01:52:29 -0600 Thanks Alyssa, great to hear from you and I will look forward to sharing online with everyone. Merry Christmas to you and all members from Tasmania.

In reply to - PJ5 became a registered member ]]> 9b238a3590f7374d604beddb66a86f25 PJ5 became a registered member https://smanewstoday.com/forums/activity/p/18977/ Fri, 20 Dec 2024 15:26:13 -0600 2