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  • Adults age 50 and older

    Posted by robin-c on January 27, 2025 at 11:52 am

    I’d like to invite anyone 50 and older, I have a private Facebook group for people like us. We can discuss everything related to aging with SMA. Come join us! NOTE- There are screening questions.

    doug-mccullough replied 6 days, 22 hours ago 6 Members · 10 Replies
  • 10 Replies
  • julie-richie

    Member
    January 28, 2025 at 2:07 pm

    Hello,

    I would like to join the SMA Over 50 group. My name is Julie. I am 58 yo and have Type 3 with 3 gene copies. I am still ambulatory but currently my strength is declining quickly.

    • robin-c

      Member
      January 28, 2025 at 3:25 pm

      That’s great. You can search for the group and click on join. I’ll be looking for your request. 🤗

      • robin-c

        Member
        January 29, 2025 at 9:14 am

        FYI – That private group is on Facebook, so if you’re not a member of Facebook you could still post here. I haven’t started a thread/group here, but perhaps someone else might?

  • PJ5

    Member
    January 28, 2025 at 7:57 pm

    Hi Robin

    Happy to be a part of this group. Im 71 with type 3b.

    Where’s the sign up please?

    Cheers John S

    • robin-c

      Member
      January 29, 2025 at 9:13 am

      That private group is on Facebook, so if you’re not a member of Facebook you could still post here. I haven’t started a thread/group here, but perhaps someone else might?

  • terry-orozco

    Member
    January 28, 2025 at 11:41 pm

    I want to join the Facebook Group. My name is Terry, and I will turn 51 in a couple of weeks.

    • robin-c

      Member
      January 29, 2025 at 9:17 am

      Hi Terry, you should be able to find it either by searching or maybe the link I just tried to post.

  • robert-stump

    Member
    January 29, 2025 at 1:17 am

    Cannot find it by searching the Groups even with the exact title “Adults with SMA age 50 & over”. Tried different variations also, please provide the link

  • doug-mccullough

    Member
    January 30, 2025 at 9:21 pm

    I also could not find the group on Facebook by searching for it. However, after I logged into FB and clicked on the link Robin provided the group popped right up and I was able to submit my request to join.

    Doug

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