SMA News Today Forums | todd | Activity https://smanewstoday.com/forums/members/toddzila/activity/ Activity feed for todd. Sat, 02 May 2026 12:26:30 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 c9ab15e983b573feea795dd6b24d3a6e todd started the discussion Introduction in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/introduction/ Thu, 10 Jan 2019 04:20:42 -0600 Introduction

Hi, my name is Todd, I am the father of an 18 month little boy whom has SMA II.  I am blessed to be his caregiver, and everyday brings some type of new joy to my life.  I truly am a better person by having the privilege to care for Aleksander, my son.  We live outside the Pensacola Florida area.  Thank you

]]> e67dd05e548597925da5fda004c444af Todd changed their profile picture https://smanewstoday.com/forums/activity/p/4131/ Thu, 27 Dec 2018 04:27:17 -0600 0 a91412d58714fcf7fa5788640ecc79a2 todd replied to the discussion Spinraza vs Zolgensma in the forum Parents​ ​and​ ​Caregivers​ https://smanewstoday.com/forums/forums/topic/spinraza-vs-zolgensma/#post-16267 Thu, 27 Dec 2018 03:38:27 -0600 Reply to Spinraza vs Zolgensma

It is a difficult decision to have to be faced with.  My son has SMA II.  He was set to receive Spinraza on a friday morning, his first dose, back in August of this year, and the Doctor had to cancel the procedure due to a personal issue.  He was brought into the STRONG study that very same day.  Strange how things occur in this world.… Read more

]]> d5a33e9af19b61769b37c5c91c559f2d todd became a registered member https://smanewstoday.com/forums/activity/p/4125/ Wed, 26 Dec 2018 11:53:04 -0600 1