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    • #16471

      Hi, my name is Todd, I am the father of an 18 month little boy whom has SMA II.  I am blessed to be his caregiver, and everyday brings some type of new joy to my life.  I truly am a better person by having the privilege to care for Aleksander, my son.  We live outside the Pensacola Florida area.  Thank you

      • This topic was modified 3 years, 7 months ago by Todd.
    • #16474
      Ryan Berhar

      Great to hear from you, Todd! I’m Ryan, one of the forum moderators. If you have any questions, please let me or one of the other moderators know.

    • #16489
      Kelly Miller

      Hi there Todd! So happy to have you added to our forum. My name is Kelly, and I am another member of this great place to get to know people. Please feel free to join in on any of the discussions we have here. Hopefully, you will feel encouragement & strength from our experiences. A lot of us have SMA II (myself included) & can give you our own insights into what your child may be going thru, as well as comfort for you as you try to navigate this sometimes confusing world of SMA.

      Looking forward to getting to know you better!

    • #16490
      Kevin Schaefer

      Thanks for introducing yourself Todd! Great to have you here. I’m 25 with Type 2, and I live in Cary, North Carolina. If you ever have any questions about growing up with SMA or anything else, feel free to ask.

      Also, are you planning on going to the Cure SMA conference this summer? I’ll be there, and I try to go every year.

    • #16518

      Hello, Todd. I’m sure I’ll have many questions for you regarding my daughter’s growth with SMA, as she is just a bit younger than your son and she also has Type 2. Welcome!

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