SMA News Today Forums | trysmiling | Activity https://smanewstoday.com/forums/members/trysmiling/activity/ Activity feed for trysmiling. Wed, 06 May 2026 16:02:00 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 c764141c3ca12d6011f012be8a25eb83 trysmiling replied to the discussion Looking for Information on SMA Type IV Onset in the forum Diagnosis​ Info ​and​ ​General​ ​Questions https://smanewstoday.com/forums/forums/topic/looking-for-information-on-sma-type-iv-onset/#post-18093 Sun, 31 Mar 2019 23:36:31 -0500 Reply to Looking for Information on SMA Type IV Onset

Thank you all for your replies and warm welcomes. And a big thanks to you, Michael, for directing me here.

DeAnn,
Thank you very much! I’ve been through a gauntlet of articles and medical papers which range from helpful to frustrating. I’ve obtained some very useful information from them but I was really hoping to find some first-hand… Read more

]]> 8ff001e5bf7a4842b26514eb0b0f9a1a trysmiling started the discussion Looking for Information on SMA Type IV Onset in the forum Diagnosis​ Info ​and​ ​General​ ​Questions https://smanewstoday.com/forums/forums/topic/looking-for-information-on-sma-type-iv-onset/ Sun, 31 Mar 2019 12:58:38 -0500 Looking for Information on SMA Type IV Onset

 

Hello! I’m a 35/m living in Japan.

Thank you for making this community. It was suggested to me by YouTuber smajourney51.

I do not have a diagnosis for SMA Type IV. I am waiting on the possibility of an EMG or genetic testing as my next appt. with my neurologist is April 20th.

May I ask what onset symptoms and speed of Type IV… Read more

]]> 36cdaf279f300c7f73e4bafcefba0b35 trysmiling became a registered member https://smanewstoday.com/forums/activity/p/5574/ Sun, 31 Mar 2019 11:20:21 -0500 2