Looking for Information on SMA Type IV Onset
Hello! I’m a 35/m living in Japan.
Thank you for making this community. It was suggested to me by YouTuber smajourney51.
I do not have a diagnosis for SMA Type IV. I am waiting on the possibility of an EMG or genetic testing as my next appt. with my neurologist is April 20th.
May I ask what onset symptoms and speed of Type IV are like? I’ve experienced a tumultuous seven months of unpleasant symptoms* but my biggest question mark is that I do not have any perceived or measured strength loss despite losing so much mass.
Thank you very much for your time and advice
* I don’t want to bore anyone with a book describing my symptoms in detail unless requested.