I find care.com to be an exercise in both misery and futility, but I know of so many users who have exactly the opposite experience.

For me, the online discussions at NMD United seem much more productive. They used to have monthly seminars on different topics like caregiver management…

I’m really doing okay. I was planning on setting aside more time to grieve, but at the moment… I don’t seem to be needing it. I’m also okay with that.

Fascinating article, and very timely for me. My first loading dose was supposed to be yesterday, but wasn’t. Monday, they will be talking to me other options-I’m assuming this is one of them. (I’m twice as old as the oldest patient in this article, so… Who knows.)