SMA News Today Forums | delara | Activity https://smanewstoday.com/forums/members/delara/activity/ Activity feed for delara. Sun, 05 Apr 2026 15:24:15 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 b4b7fe3843d200dbe0229115ea331d0d delara and alyssa-silva are now connected https://smanewstoday.com/forums/activity/p/13165/ Fri, 21 May 2021 00:34:46 -0500 0 96c906bd3d270f0f379fb5e975a12d2c delara replied to the discussion What Do You Want to See From SMA My Way? in the forum Raising Awareness of SMA https://smanewstoday.com/forums/forums/topic/what-do-you-want-to-see-from-sma-my-way/#post-25369 Fri, 20 Nov 2020 14:03:26 -0600 Reply to What Do You Want to See From SMA My Way?

I ask God for justice. Medicine is my daughter’s right

]]> 722811106eb76dc6cfa3746ad1a3020d delara replied to the discussion Search ngo for fund raising in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/search-ngo-for-fund-raising/#post-25312 Thu, 12 Nov 2020 16:44:54 -0600 Reply to Search ngo for fund raising

Thank you very much Kevin. I call them

]]> 4f70c7f7c5fb0e9bee0bf0b80982d668 delara started the discussion Search ngo for fund raising in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/search-ngo-for-fund-raising/ Tue, 10 Nov 2020 19:58:46 -0600 Search ngo for fund raising

Hello. We live in Iran. SMA is not supported by any institution in our country. We recently saw the results of zolgensma and are very hopeful that we can use it. Do you know an ngo that can help?

]]> fec2227d4a803331b1ad43b4e56f2af6 Delara changed their profile picture https://smanewstoday.com/forums/activity/p/11747/ Tue, 10 Nov 2020 19:44:27 -0600 0 f544f98d13467fdc0a34ad86aba380bb delara replied to the discussion Columnist Writes About the Snowball Effect in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/columnist-writes-about-the-snowball-effect/#post-25285 Tue, 10 Nov 2020 19:34:14 -0600 Reply to Columnist Writes About the Snowball Effect

hardly

]]> 0aaa9bc491842c5d486f1310aac4fe9f delara replied to the discussion Looking for Evrysdi Updates in the forum Evrysdi (risdiplam) https://smanewstoday.com/forums/forums/topic/looking-for-evrysdi-updates/#post-25253 Fri, 06 Nov 2020 19:46:23 -0600 Reply to Looking for Evrysdi Updates

Hello. Unfortunately, no medicine in our country has been approved by health institutions. Evrysdi has recently received FDA approval and we very much hope it will work better due to its cheaper price and less hassle. So far, Brazil, Japan and the United States have issued licenses, and the drug will likely be available in the next few months.… Read more

]]> ecb575abdf2473b2f190b457f1ada2f6 delara became a registered member https://smanewstoday.com/forums/activity/p/11716/ Thu, 05 Nov 2020 20:33:02 -0600 0