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This topic has 2 replies, 2 voices, and was last updated 6 months ago by Delara.

  • Author
    Posts
    • #25286
      Delara
      Participant

      Hello. We live in Iran. SMA is not supported by any institution in our country. We recently saw the results of zolgensma and are very hopeful that we can use it. Do you know an ngo that can help?

    • #25291
      Kevin Schaefer
      Keymaster

      Hi Delara, have you reached out to Cure SMA? They’re a great resource for connecting families to researchers and specialists. http://www.curesma.org

      -Kevin

    • #25312
      Delara
      Participant

      Thank you very much Kevin. I call them

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