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  • Adults ​With​ ​SMA

    Search ngo for fund raising

    Posted by delara on November 10, 2020 at 1:58 pm

    Hello. We live in Iran. SMA is not supported by any institution in our country. We recently saw the results of zolgensma and are very hopeful that we can use it. Do you know an ngo that can help?

    delara replied 3 years, 5 months ago 2 Members · 2 Replies
  • 2 Replies

  • kevin-schaefer

    Member
    November 10, 2020 at 6:31 pm

    Hi Delara, have you reached out to Cure SMA? They’re a great resource for connecting families to researchers and specialists. http://www.curesma.org

    -Kevin

  • delara

    Member
    November 12, 2020 at 10:44 am

    Thank you very much Kevin. I call them

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