Hey Alyssa, thanks for sharing. I can’t remember the brand but I use a topical CBD lotion for pain and it’s amazing – truly nothing has helped like it. As far as gummies go, I bought some but I’ve nervous to try.

Do you remember the brand?

Hi there! My mom (caregiver) and I fly kinda often so here’s my tips.

・I prefer United. I have never ever had problems with them.

・Make as minimum work for them as possible. For us, we put the brakes on and put the chair joystick to the side. Sounds simple but the easy things surprise them.

Aside from this, I would recommend on board 2-3…

Read more

Hey friends! I have a similar question! I’m 25 and am so grateful to have my family to help for care but I’m thinking of maybe moving out next year because my friends have found these incredible accessible apartments that I’m thinking about moving do but the question of care still remains. Has anyone done a live in?

Oh absolutely! After a hospital visit in 2022, I had to take a break from seeing doctors for a bit because it was so much. I still do this to this day if I don’t have to see the doctor. SMA can be so draining especially with air travel. For every day I would say schedule rest, it’s a must! You might not think that you’re doing a lot, just…

Read more

Of course! Thank you for letting me know about this! Mom and I are in charge of events, although we haven’t been involved since the pandemic and are trying to get back into it! Laura Watson currently runs the chapter and we are trying to organize events including a silent auction! Last year’s walk n roll was incredible and we raised so much…

Read more

I’m thinking I might be! How do I get diagnosed?

Hello all! I’m Kellie Cusack! A she/they 24-year-old with SMA type 2! I might look familiar to you as I’ve been advocating since I was 10 and have been active in the community since then! My mom and I are co-chairs for the North Jersey chapter. You also might know me from the incredible Double/Take Fashion Show that was in NYC in 2022 and at…

Read more

I personally love my Lexapro.

Hello there! So glad that this is being discussed because I suffered with depression for YEARS and SMA made it so much worse. For me, Lexapro really helped and getting into hobbies as well as trying small different things to do! It can be really tough especially in the Winter, but mix things up and don’t be afraid to do new things, you got it!