Roho is the best cushion. I first saw them at an expo in Chicago in 1978. I started using them in 1982. Yeah, they do develop leaks. They come with a patch that never works. You can always send it back to the plant to be fixed. That’s why you should always have a spare. You don’t have to use the spare very often, but it is great to have it there.

Sometime in the late aughts there were some Mac programmers who came up with MacSpeech. It had some glitches, but it was OK. I graded it a B. It was bought out by the company that makes Dragon, for PCs only. There was no Mac version of Dragon until they bought MacSpeech and changed its name to Dragon Dictate. They did not improve it. They did…

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10 years ago they made a case for putting in a G-tube right after they installed a tracheostomy. The reason that they gave me was that there is a tendency for people with a trach to aspirate food and liquid. That is not the reason why I went ahead with it. I remembered later that other friends of mine who have a trach did not also have the G…

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They are the only pharmacy under contract in America to sell that stuff. It could be worse. It could be better. If you order by phone they follow a script that treats everyone as if they were a new customer, which wastes enormous amounts of time. I have been taking it over four years, and I’m on dose number 1,494. They always ask how much…

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The world is ruled by nondisabled people who are all trained falsely to believe we are all incapable and incompetent. They want to maintain a status quo with an old system that uses us as a commodity so that they can earn profit. In that system, one hand washes the other. So either they don’t know what to do with you or they make sure you go…

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20 years ago I set up profiles in the dating websites. I did it both ways, not mentioning my disability and writing openly about my advocacy work. It didn’t seem to make a difference. It’s easier for women because guys always make the first move. My close friend posted her profile. Guys responded to her picture and didn’t even read what she…

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nine years ago I got a G-tube. By the way, if you see any spelling errors is yours it is because Apple voice control is horrible and I don’t have the time to be particular about this writing. Anyway, the idea of the tube it’s a good one, but for me it turned out to be a little bit more trouble than it’s worth. Apparently, because there is…

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