Adam

“I used to have a somewhat negative view of life with SMA and a disability. But I’ve been able to see that life truly is beautiful, especially with SMA. It makes those sweet moments that much sweeter.”

Does it? How’s someone whose always had SMA make that call without having experienced an alternative?

Sorry to be cynical but if she woke up tom…[Read more]

Great question. I’ve been wrestling with the same thoughts but around cooking. I have cooked and loved cooking since I was a little kid. All my mum, grandparents, aunties, uncles etc. could cook but by about 17 I was better and that became my thing; family gathering? What’s Adam got on the menu?

It took me ages but I loved preparing everything.…[Read more]

Absolutely bad mood right off the bat! As if being hungry doesn’t make you grouchy already you just wanna hop outta bed & go cook/order something & devour it. But by the time I’m up & ready for any of that I’m over it.

Yeah, I think I always dream but only remember maybe two or three every few months. They are very vivid while others just seem to fade away in my memory no matter how much I try and recall them when I wake up.

Dreams fascinate me. Like your brain is powering along while you’re out cold, with almost no control over any of it, your brain is taking…[Read more]

Very well put, Susana.

Simple fact is there is no vay-cay from this. In fact going on “vacation” is more stressful than just staying in the holding pattern of everyday life.

I try make everyday a holiday; sleep late, drink too much, eat what I want, whatever – I aint getting any healthier anyway & life isn’t gonna improve as I age. Eating is difficult now & booze is…[Read more]

Always driving or at least in my chair in a vehicle. Whenever in a vehicle almost always the driver is the cab driver who drover me to school & back for 7yrs. He killed himself nearly 20yrs ago.

When just in my chair I’m either really skilful (usually back playing sport) or my battery is dying and I’m traveling uphill and I can’t do something I…[Read more]

Never heard of it. A whole month hey? Everyday here seems devoted to a cause with its own colour ribbon so I tune out.

I used to hate International Day of People with Disabilities (or whatever it is) when I worked. Became like a mascot and it felt like people went out of their way to engage in pointless conversation with me.

Personally I think…[Read more]

I despise the wasteful commercial aspect of xmas & refused the trading of meaningless crap with others for a while now.

The festive season is also peak drought & fire season in Oz so I make donations to places that help the injured wildlife or deliver water to farmers.

The best way to let people know would be to tell them you’ll be making a…[Read more]

F Is For Family on Netflix.

Cartoon by Bill Burr set in 70’s. If you like his comedy you’ll like this.

They showed up 2hrs early because the vax was gonna reach it’s “too long outta deep freeze” or something. I was in bed still.

2nd shot knocked me round a bit for 24hrs. Worth it but, now I get awesome 5G and Bill Gates talks to me in my sleep.

Guys with MD I played sport with 15+ years ago used gel like pouches they’d snap to release heat & you could boil them or something to re-use.

I found a chemist a couple years ago that had these little tea bag like things you rub in your hands & they get hot for 50cents each. I brought em all. They helped warm my right hand to help my left hand…[Read more]

Yep totally get you.

Especially “It hasn’t clicked that if they put the cup in a specific spot now it means they won’t have to get me something to drink down the road.”

Take an extra minute now to get it right & you won’t have me complaining later. Simples!

As Blake says they’re being paid too. Sometimes its hard not to raise your voice & say…[Read more]

I headbutted my family doctor when I was like 8 in an attempt to stop him taking a blood test while my mum & grandfather held me down. My veins have always been hard to hit too so never was a quick or easy process. They’d make me push my manual chair around the car park for ages beforehand to try get the veins pumped up & easier to find.

Jab in…[Read more]

I told my needle giver “I’m gonna look over here & continue rambling & you just stick me without any warn-” and she says “all done!”

I have an irrational phobia of needles. Anyone describing how far its going in etc. would have to chase me down the street! I had 3 beers, some weed & meditated before they got here to calm the nerves lol

This sounds like an absolute clusterfu … umm, schamozzle. Like no one who should know knows anything or are just passing the buck hoping you shut up & go away.

In situations like this I hit the phones & break balls until I get answers. If I don’t like the answer I become a pain in their bosses arse. Threaten things like going to the media,…[Read more]

I’m in a whole different country so I have zero knowledge in regards to your particular situation.

Personally I’d take the place and tackle the other BS if/when that crops up. You’ve already done a lot of working & waiting to get this far, I wouldn’t flush all that too easily. Right now you got no unit & a potential problem – you could have that…[Read more]

I figure I’m toast if I get C19, that’s almost certain to happen without the vax. The vax like anything has risks too but the odds are much better. I’m more likely to die in a road accident on my way home.

I’m interested to know what “I did my own research” involves for people who say that. Like, you been slaving away in the laboratory utilizing…[Read more]

Ketchup every day – 3 times daily even is preferred over hitting dog crap once! Ketchup doesn’t smoosh into the tread of your tires and need to be picked out with a stick. Ketchup will rinse away under the hose. The smell might linger but I’ll happily sniff & even eat ketchup, I’m not going near dog poo.

Bit like Alyssa, never been stung so dunno if I’m allergic. My grandfather was highly allergic to bees.

Neither a bee or spider will hurt you if you do nothing but while both would make me squeal I’d prefer the bee.

Spider will look for somewhere dark & warm & can only run. It’ll likely crawl into my shirt. If a bee lands on me its taking a…[Read more]