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    • SMA Forums Welcome Lounge
      New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
    • 6
    • 15
    • 1 month, 1 week ago

       Kevin Schaefer

    • SMA​ ​Parents​ ​and​ ​Caregivers​
      This​ ​forum​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​parents and​ ​caregivers​ ​to​ ​talk​ ​with​ ​each​ ​other,​ ​share​ ​tips,​ ​ask​ ​each​ ​other​ ​questions,​ ​etc.​ ​This​ ​is​ ​a​ ​place​ ​for​ ​veteran​ ​parents​ ​to help​ ​out​ ​the​ ​younger​ ​ones​ ​with​ ​newly​ ​diagnosed​ ​kids.
    • 28
    • 54
    • 1 week, 5 days ago

       DeAnn R

    • Adults​ ​With​ ​SMA
      This​ ​is open​ ​to​ ​any​ ​SMA​ ​individual​ ​18​ ​and​ ​older.​ Here​ ​is​ ​where​ ​people​ ​can​ ​find​ ​information​ ​about​ ​anything​ ​from entering​ ​the​ ​workforce​ ​to​ ​living​ ​independently.​
    • 88
    • 309
    • 1 day, 6 hours ago

       DeAnn R

    • Dose of DeAnn: A Glimpse into my Life with SMA
      DeAnn Runge talks about how having SMA affects everything from her daily living to the kinds of technology she uses to be more independent. Topics such as Spinraza, traveling, service dogs and Amazon Alexa technology are all discussed in these videos. This vlog is a great resource for SMA individuals and families.
    • 3
    • 12
    • 3 days, 13 hours ago

       Kevin Schaefer

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.
    • 9
    • 17
    • 3 weeks, 4 days ago

       SMA News Today Moderator

    • Spinraza
      We​ ​will ​add​ ​forums​ ​for​ ​other​ ​treatments/drugs​ ​in​ ​clinical​ ​trials​ ​later​ ​on,​ ​but for​ ​now​, we'll​ ​keep​ ​the​ ​focus​ ​on​ ​Spinraza.​ ​This​ ​will​ ​be​ ​a​ ​great​ ​place​ ​for​ ​anyone​ ​to​ ​ask questions​ ​about​ ​the​ ​treatment​ ​and​ ​share​ ​experiences.
    • 32
    • 110
    • 2 days, 12 hours ago

       Kevin Schaefer

    • ​Teens​ ​With​ ​SMA
      This​ ​​will​ ​be​ ​a​ ​place​ ​for​ ​SMA​ ​teens​ ​to​ ​connect, vent,​ ​share​ ​frustrations​ ​and​ ​ask​ ​each​ ​other​ ​questions.​ ​Plus,​ ​you ​can​ ​get advice​ ​from​ ​someone​ ​with​ ​SMA​ ​who’s​ ​not​ ​that​ ​much​ ​older​ ​than​ ​them.
    • 6
    • 22
    • 1 week, 2 days ago

       David Z

    • SMA Assistive Technology/Equipment
      This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices
    • 4
    • 25
    • 2 days, 7 hours ago

       Ryan Berhar

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