Log In or Register to Join The Conversation!

SMA News Forums

Home Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Adults ​With​ ​SMA
      This forum is for adults who have SMA to connect, ask questions and share experiences. Discussion topics here range from independent living to managing work and social lives. Adults with SMA are welcome to join.
    • 1,087
    • 4,300
    • 1 day, 8 hours ago

      Alyssa Silva

    • SMA Forums Welcome Lounge
      New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
    • 34
    • 160
    • 1 month, 3 weeks ago

      Lupa F

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.
    • 30
    • 137
    • 2 days, 12 hours ago

      Brianna Albers

    • SMA​ ​Parents​ ​and​ ​Caregivers​
      This​ ​forum​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​parents and​ ​caregivers​ ​to​ ​talk​ ​with​ ​each​ ​other,​ ​share​ ​tips,​ ​ask​ ​each​ ​other​ ​questions,​ ​etc.​ ​This​ ​is​ ​a​ ​place​ ​for​ ​veteran​ ​parents​ ​to help​ ​out​ ​the​ ​younger​ ​ones​ ​with​ ​newly​ ​diagnosed​ ​kids.
    • 174
    • 432
    • 2 months, 1 week ago

      Kevin Schaefer

    • Spinraza
      This forum is for discussing information, questions and experiences regarding Spinraza (Nusinersen). Spinraza is developed by Biogen pharmaceuticals, and it became the first FDA-approved treatment for SMA in 2016.
    • 139
    • 562
    • 1 week, 1 day ago

      Jasna Grujic

    • The SMA News Today YouTube Channel
      This forum contains links and videos to all content on the SMA News Today YouTube channel. Videographers DeAnn Runge and Michael Morale share their perspectives as SMA patients. In these videos they discuss their daily lives, how SMA affects them and the latest news on SMA research and treatments.
    • 153
    • 377
    • 1 month, 2 weeks ago

      DeAnn R

    • SMA Assistive Technology/Equipment
      This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices.
    • 179
    • 810
    • 4 hours, 23 minutes ago

      Amy Olmscheid

    • Disability in Media
      This forum is for discussions about disability portrayal in books, movies, tv shows, music and other forms of media. We will discuss books like the popular memoir “Laughing at my Nightmare” by Shane Burcaw, an author who has SMA. The idea is to explore how disability is portrayed in mainstream media, and to look for content written and produced by people with disabilities. Suggestions are always welcome.
    • 52
    • 201
    • 2 weeks, 2 days ago

      oluwaseun

  •  


Who’s Online

There are no users currently online

Log In

 Log in with Facebook
or

Lost your password?
Register



Members

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
 Log in with Facebook
or

Log in with your credentials

or    

Forgot your details?

 Log in with Facebook
or

Create Account

Copyright © 2017-2021 All rights reserved.