Raising Awareness of SMA
This is a forum for individuals to share ideas to help raise awareness of SMA or initiatives that they feel warrant the community's support.
- 4 hours, 51 minutes ago
SMA Forums Welcome Lounge
New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
- 1 day, 4 hours ago
SMA Parents and Caregivers
This forum is a place for SMA parents and caregivers to talk with each other, share tips, ask each other questions, etc. This is a place for veteran parents to help out the younger ones with newly diagnosed kids.
- 1 week, 3 days ago
Adults With SMA
This is open to any SMA individual 18 and older. Here is where people can find information about anything from entering the workforce to living independently.
- 1 day, 21 hours ago
Diagnosis Information and General Questions
This forum is designed for newly diagnosed patients and parents/caregivers who are looking for information about where to start in their SMA journey. Here is where people can ask basic questions about SMA and sort of help each other through the initial diagnosis stage.
- 1 week, 6 days ago
Going To College When You Have SMA
Whether people commute from home or go to a university states away from where their parents live, this is a place for SMA college students to share tips and ask each other questions.
- 3 days, 3 hours ago
SMA and Dating/Relationships
This is a forum for SMA individuals to discuss dating, relationships and, marriage.
- 3 days, 2 hours ago
SMA Therapy News
This group shares and reacts to news and research related to approved and emerging SMA treatments and therapies. If you find a news article about SMA R&D, feel free to post it here or react to other people's posts.
- 4 days ago
We will add forums for other treatments/drugs in clinical trials later on, but for now, we'll keep the focus on Spinraza. This will be a great place for anyone to ask questions about the treatment and share experiences.
- 3 days, 6 hours ago
Teens With SMA
This will be a place for SMA teens to connect, vent, share frustrations and ask each other questions. Plus, you can get advice from someone with SMA who’s not that much older than them.
- 5 days, 20 hours ago
Amazon Alexa and SMA
Amazon Alexa devices play a major role in today’s technology. The Echo Dot and Echo Show are some of the most advanced and innovative tools on the market, and they can be extremely helpful for people with SMA and other disabilities. This forum is designed for SMA individuals to discuss how this technology helps them in their daily lives. Whether you have an Amazon Alexa device or you just want to learn more about them, this is a platform to share experiences and information related to the Echo Dot and Echo Show. SMA parents and caregivers are also welcome to join this discussion.
- 6 days, 3 hours ago
- Raising Awareness of SMA