• Sponsored Post

    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

      • Forum
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      • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
        This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.
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      • 55
      • 5 months, 2 weeks ago

         Jeremiah Kelley

      • SMA​ ​Parents​ ​and​ ​Caregivers​
        This​ ​forum​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​parents and​ ​caregivers​ ​to​ ​talk​ ​with​ ​each​ ​other,​ ​share​ ​tips,​ ​ask​ ​each​ ​other​ ​questions,​ ​etc.​ ​This​ ​is​ ​a​ ​place​ ​for​ ​veteran​ ​parents​ ​to help​ ​out​ ​the​ ​younger​ ​ones​ ​with​ ​newly​ ​diagnosed​ ​kids.
      • 121
      • 303
      • 5 days, 16 hours ago

         Halsey Blocher

      • Disability in Media
        This forum is for discussions about disability portrayal in books, movies, tv shows, music and other forms of media. We will discuss books like the popular memoir “Laughing at my Nightmare” by Shane Burcaw, an author who has SMA. The idea is to explore how disability is portrayed in mainstream media, and to look for content written and produced by people with disabilities. Suggestions are always welcome.
      • 26
      • 134
      • 1 week, 3 days ago

         DeAnn R

      • SMA Forums Welcome Lounge
        New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
      • 23
      • 113
      • 2 months, 1 week ago

         Krystal

      • The SMA News Today YouTube Channel
        This forum contains links and videos to all content on the SMA News Today YouTube channel. Videographers DeAnn Runge and Michael Morale share their perspectives as SMA patients. In these videos they discuss their daily lives, how SMA affects them and the latest news on SMA research and treatments.
      • 87
      • 220
      • 1 week, 2 days ago

         Kevin Schaefer

      • SMA Assistive Technology/Equipment
        This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices
      • 109
      • 509
      • 5 days, 16 hours ago

         Halsey Blocher

      • Spinraza
        We​ ​will ​add​ ​forums​ ​for​ ​other​ ​treatments/drugs​ ​in​ ​clinical​ ​trials​ ​later​ ​on,​ ​but for​ ​now​, we'll​ ​keep​ ​the​ ​focus​ ​on​ ​Spinraza.​ ​This​ ​will​ ​be​ ​a​ ​great​ ​place​ ​for​ ​anyone​ ​to​ ​ask questions​ ​about​ ​the​ ​treatment​ ​and​ ​share​ ​experiences.
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      • 472
      • 16 hours, 34 minutes ago

         DeAnn R


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