Raising Awareness of SMA
This is a forum for individuals to share ideas to help raise awareness of SMA or initiatives that they feel warrant the community's support.
- 1 week, 5 days ago
SMA Forums Welcome Lounge
New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
- 1 month, 1 week ago
SMA Parents and Caregivers
This forum is a place for SMA parents and caregivers to talk with each other, share tips, ask each other questions, etc. This is a place for veteran parents to help out the younger ones with newly diagnosed kids.
- 1 week, 5 days ago
Adults With SMA
This is open to any SMA individual 18 and older. Here is where people can find information about anything from entering the workforce to living independently.
- 1 day, 6 hours ago
Dose of DeAnn: A Glimpse into my Life with SMA
DeAnn Runge talks about how having SMA affects everything from her daily living to the kinds of technology she uses to be more independent. Topics such as Spinraza, traveling, service dogs and Amazon Alexa technology are all discussed in these videos. This vlog is a great resource for SMA individuals and families.
- 3 days, 13 hours ago
Diagnosis Information and General Questions
This forum is designed for newly diagnosed patients and parents/caregivers who are looking for information about where to start in their SMA journey. Here is where people can ask basic questions about SMA and sort of help each other through the initial diagnosis stage.
- 3 weeks, 4 days ago
Going To College When You Have SMA
Whether people commute from home or go to a university states away from where their parents live, this is a place for SMA college students to share tips and ask each other questions.
- 5 days, 14 hours ago
SMA and Dating/Relationships
This is a forum for SMA individuals to discuss dating, relationships and, marriage.
- 2 days, 6 hours ago
Polls & Quizzes
Take part in a wide range of polls, surveys & quizzes pertaining to SMA..
- 2 weeks, 3 days ago
SMA Therapy News
This group shares and reacts to news and research related to approved and emerging SMA treatments and therapies. If you find a news article about SMA R&D, feel free to post it here or react to other people's posts.
- 3 weeks, 6 days ago
We will add forums for other treatments/drugs in clinical trials later on, but for now, we'll keep the focus on Spinraza. This will be a great place for anyone to ask questions about the treatment and share experiences.
- 2 days, 12 hours ago
Teens With SMA
This will be a place for SMA teens to connect, vent, share frustrations and ask each other questions. Plus, you can get advice from someone with SMA who’s not that much older than them.
- 1 week, 2 days ago
SMA Assistive Technology/Equipment
This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices
- 2 days, 7 hours ago
- Raising Awareness of SMA