SMA News Forums

Home Forums

    • Forum
    • Topics
    • Posts
    • Last Post
    • Adults ​With​ ​SMA
      This forum is for adults who have SMA to connect, ask questions and share experiences. Discussion topics here range from independent living to managing work and social lives. Adults with SMA are welcome to join.
    • 1,114
    • 4,454
    • 22 hours, 2 minutes ago

      Lupa F

    • SMA Forums Welcome Lounge
      New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
    • 34
    • 170
    • 1 week, 2 days ago

      Alyssa Silva

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.
    • 30
    • 137
    • 2 months, 2 weeks ago

      Brianna Albers

    • 31 Days of SMA
      31 Days of SMA is a social media campaign that coincides with SMA awareness month. Every day in August, we will feature a story from someone in the SMA community. You can follow the stories here.
    • 0
    • 0
    • No Topics

    • SMA​ ​Parents​ ​and​ ​Caregivers​
      This​ ​forum​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​parents and​ ​caregivers​ ​to​ ​talk​ ​with​ ​each​ ​other,​ ​share​ ​tips,​ ​ask​ ​each​ ​other​ ​questions,​ ​etc.​ ​This​ ​is​ ​a​ ​place​ ​for​ ​veteran​ ​parents​ ​to help​ ​out​ ​the​ ​younger​ ​ones​ ​with​ ​newly​ ​diagnosed​ ​kids.
    • 174
    • 432
    • 4 months, 3 weeks ago

      Kevin Schaefer

    • Weekly Wins
      This is a space to share weekly highlights and generally positive things. What’s something good that happened to you this week? We all need a little motivation and a space to lift each other up. Feel free to share anytime.
    • 3
    • 5
    • 3 weeks ago

      DeAnn R

    • Spinraza
      This forum is for discussing information, questions and experiences regarding Spinraza (Nusinersen). Spinraza is developed by Biogen pharmaceuticals, and it became the first FDA-approved treatment for SMA in 2016.
    • 140
    • 567
    • 1 week, 5 days ago

      DeAnn R

    • Would You Rather?
      In this forum, we’ll post "would you rather" topics. The idea is to have fun questions where you have to choose between two hypothetical situations. Some of these will be SMA-related and others won’t. Hope you enjoy it!
    • 12
    • 24
    • 2 weeks, 6 days ago

      DeAnn R

    • The SMA News Today YouTube Channel
      This forum contains links and videos to all content on the SMA News Today YouTube channel. Videographers DeAnn Runge and Michael Morale share their perspectives as SMA patients. In these videos they discuss their daily lives, how SMA affects them and the latest news on SMA research and treatments.
    • 159
    • 394
    • 1 week, 2 days ago

      DeAnn R

    • SMA Assistive Technology/Equipment
      This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices.
    • 189
    • 848
    • 1 day, 5 hours ago

      DeAnn R

    • Disability in Media
      This forum is for discussions about disability portrayal in books, movies, tv shows, music and other forms of media. We will discuss books like the popular memoir “Laughing at my Nightmare” by Shane Burcaw, an author who has SMA. The idea is to explore how disability is portrayed in mainstream media, and to look for content written and produced by people with disabilities. Suggestions are always welcome.
    • 58
    • 213
    • 1 week ago

      Alyssa Silva

  •  


Log In


Lost your password?
Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online


Members

BioNews Services, LLC

3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: 1-800-936-1363

Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2021 All rights reserved.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account