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    • SMA Forums Welcome Lounge
      New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!
    • 1
    • 1
    • 2 weeks, 2 days ago

       Michael Nace

    • SMA​ ​Parents​ ​and​ ​Caregivers​
      This​ ​forum​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​parents and​ ​caregivers​ ​to​ ​talk​ ​with​ ​each​ ​other,​ ​share​ ​tips,​ ​ask​ ​each​ ​other​ ​questions,​ ​etc.​ ​This​ ​is​ ​a​ ​place​ ​for​ ​veteran​ ​parents​ ​to help​ ​out​ ​the​ ​younger​ ​ones​ ​with​ ​newly​ ​diagnosed​ ​kids.
    • 6
    • 9
    • 3 days, 8 hours ago

       Kevin Schaefer

    • Adults​ ​With​ ​SMA
      This​ ​is open​ ​to​ ​any​ ​SMA​ ​individual​ ​18​ ​and​ ​older.​ Here​ ​is​ ​where​ ​people​ ​can​ ​find​ ​information​ ​about​ ​anything​ ​from entering​ ​the​ ​workforce​ ​to​ ​living​ ​independently.​
    • 13
    • 32
    • 2 hours, 6 minutes ago

       Kevin Schaefer

    • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
      This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.
    • 2
    • 2
    • 3 weeks ago

       Kevin Schaefer

    • SMA Therapy News
      This group shares and reacts to news and research related to approved and emerging SMA treatments and therapies. If you find a news article about SMA R&D, feel free to post it here or react to other people's posts.
    • 7
    • 9
    • 1 week, 4 days ago

       Michael Nace

    • Spinraza
      We​ ​will ​add​ ​forums​ ​for​ ​other​ ​treatments/drugs​ ​in​ ​clinical​ ​trials​ ​later​ ​on,​ ​but for​ ​now​, we'll​ ​keep​ ​the​ ​focus​ ​on​ ​Spinraza.​ ​This​ ​will​ ​be​ ​a​ ​great​ ​place​ ​for​ ​anyone​ ​to​ ​ask questions​ ​about​ ​the​ ​treatment​ ​and​ ​share​ ​experiences.
    • 6
    • 15
    • 2 days, 10 hours ago

       DeAnn R

    • ​Teens​ ​With​ ​SMA
      This​ ​​will​ ​be​ ​a​ ​place​ ​for​ ​SMA​ ​teens​ ​to​ ​connect, vent,​ ​share​ ​frustrations​ ​and​ ​ask​ ​each​ ​other​ ​questions.​ ​Plus,​ ​you ​can​ ​get advice​ ​from​ ​someone​ ​with​ ​SMA​ ​who’s​ ​not​ ​that​ ​much​ ​older​ ​than​ ​them.
    • 4
    • 5
    • 3 days, 12 hours ago

       Kevin Schaefer

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