SMA News Forums

New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!

This forum is for people who have SMA to connect, ask questions and share experiences. Discussion topics here range from independent living to managing work and social lives. Teens and adults with SMA are welcome to join.

This​ ​forum​ is​ ​designed​ ​for​ ​newly​ ​diagnosed patients​ ​and​ ​parents/caregivers​ ​who​ ​are​ ​looking​ ​for​ ​information​ ​about​ ​where​ ​to​ ​start​ ​in​ ​their SMA​ ​journey.​ ​Here​ ​is​ ​where​ ​people​ ​can​ ​ask​ ​basic​ ​questions​ ​about​ ​SMA​ ​and​ ​sort​ ​of​ ​help​ ​each other​ ​through​ ​the​ ​initial​ ​diagnosis​ ​stage.

This​ ​is​ ​a​ ​forum​ ​for​ ​SMA​ ​individuals​ ​to​ ​discuss​ ​dating, relationships​ ​and,​ ​marriage.

This group shares and reacts to news and research related to approved and emerging SMA treatments and therapies. If you find a news article about SMA R&D, feel free to post it here or react to other people's posts.

This forum is for sharing information about tools and technologies that can benefit people with SMA. Between Amazon Alexa devices, adaptive equipment for wheelchairs and other tools designed to assist SMA individuals in their daily lives, there are new technologies being developed every day. This is a platform to ask questions and share information about these devices