SMA News Forums

This forum is for discussions about disability portrayal in books, movies, tv shows, music and other forms of media. We will discuss books like the popular memoir “Laughing at my Nightmare” by Shane Burcaw, an author who has SMA. The idea is to explore how disability is portrayed in mainstream media, and to look for content written and produced by people with disabilities. Suggestions are always welcome.

New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!

This forum contains links and videos to all content on the SMA News Today YouTube channel. Videographers DeAnn Runge and Michael Morale share their perspectives as SMA patients. In these videos they discuss their daily lives, how SMA affects them and the latest news on SMA research and treatments.

Whether​ ​people​ ​commute​ ​from​ ​home​ ​or​ ​go​ ​to​ ​a university​ ​states​ ​away​ ​from​ ​where​ ​their​ ​parents​ ​live,​ ​this​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​college students​ ​to​ ​share​ ​tips​ ​and​ ​ask​ ​each​ ​other​ ​questions.

Take part in a wide range of polls, surveys & quizzes pertaining to SMA..

We​ ​will ​add​ ​forums​ ​for​ ​other​ ​treatments/drugs​ ​in​ ​clinical​ ​trials​ ​later​ ​on,​ ​but for​ ​now​, we'll​ ​keep​ ​the​ ​focus​ ​on​ ​Spinraza.​ ​This​ ​will​ ​be​ ​a​ ​great​ ​place​ ​for​ ​anyone​ ​to​ ​ask questions​ ​about​ ​the​ ​treatment​ ​and​ ​share​ ​experiences.