SMA News Forums

New to the forum? Be sure to introduce yourself here. It's the perfect place to talk a bit about yourself and your SMA journey, as well as get to know our community of individuals with SMA and parents and caregivers whose loved ones have the disease. We look forward to getting to know you!

This​ ​is open​ ​to​ ​any​ ​SMA​ ​individual​ ​18​ ​and​ ​older.​ Here​ ​is​ ​where​ ​people​ ​can​ ​find​ ​information​ ​about​ ​anything​ ​from entering​ ​the​ ​workforce​ ​to​ ​living​ ​independently.​

Whether​ ​people​ ​commute​ ​from​ ​home​ ​or​ ​go​ ​to​ ​a university​ ​states​ ​away​ ​from​ ​where​ ​their​ ​parents​ ​live,​ ​this​ ​is​ ​a​ ​place​ ​for​ ​SMA​ ​college students​ ​to​ ​share​ ​tips​ ​and​ ​ask​ ​each​ ​other​ ​questions.

This group shares and reacts to news and research related to approved and emerging SMA treatments and therapies. If you find a news article about SMA R&D, feel free to post it here or react to other people's posts.

This​ ​​will​ ​be​ ​a​ ​place​ ​for​ ​SMA​ ​teens​ ​to​ ​connect, vent,​ ​share​ ​frustrations​ ​and​ ​ask​ ​each​ ​other​ ​questions.​ ​Plus,​ ​you ​can​ ​get advice​ ​from​ ​someone​ ​with​ ​SMA​ ​who’s​ ​not​ ​that​ ​much​ ​older​ ​than​ ​them.

 Amazon Alexa devices play a major role in today’s technology. The Echo Dot and Echo Show are some of the most advanced and innovative tools on the market, and they can be extremely helpful for people with SMA and other disabilities. This forum is designed for SMA individuals to discuss how this technology helps them in their daily lives. Whether you have an Amazon Alexa device or you just want to learn more about them, this is a platform to share experiences and information related to the Echo Dot and Echo Show. SMA parents and caregivers are also welcome to join this discussion.