As much as I try to shove this feeling aside, there’s a part of me that quietly dreads this time of year. Amid the beach days, hot weather, and all the other joys this season brings, I simultaneously face a significant challenge: The medical team at my hospital is changing.
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“Dear God, why did you not bless me with resting bitch face?” That was my prayer on May 23, 2025. I’d been up since 8 a.m. It was past 5 p.m., and I was exhausted from a pain management nerve ablation done that day. I was on my way…
Muscle-related body composition measures improved in children with spinal muscular atrophy (SMA) types 2 and 3 who were treated with Spinraza (nusinersen), and the improvements correlated with better motor function, a study found. “Indicators of muscle mass increased in children with SMA types 2 and 3 as treatment…
The case of a woman with spinal muscular atrophy (SMA) type 2 who developed an abnormal accumulation of molecules called ketone bodies was described in a recent case report in the U.S. Called ketoacidosis, this occurs when fats are broken down to obtain energy, resulting in ketone bodies being…
On the afternoon of July 7, 1997, a sickening thud and screams hailed from the front yard. Our older children, Matthew, 10, and Katie, 7, had been playing with our two dogs when one of them, Duffy, darted to chase the mail carrier’s vehicle. The mail carrier couldn’t avoid hitting…
It is with deep sadness and heavy hearts that we announce the passing of our beloved friend, coworker, and advocate, Michael Morale. Michael died in his home in Irving, Texas, on June 7 at the age of 59. I first encountered Michael through his personal YouTube channel in 2018.
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