When people talk about Medicaid, it often sounds distant or technical. It is usually discussed in terms of coverage, rules, or eligibility. For me, Medicaid is much more personal. It shows up in my everyday life in quiet but important ways. It affects how safe I feel about my…
Discussion
A study in adults with spinal muscular atrophy (SMA) found that Evrysdi (risdiplam) helps the body produce more functional SMN protein, and also revealed molecular differences between SMA types 2 and 3 that may affect how the disease progresses and responds to treatment. The findings, which showed differences…
Discussion
A former caregiver and friend once told me that she’d never spent a night in the hospital for any kind of illness or injury. Despite working as a nurse and surrounding herself with medical scenarios on a daily basis, she’d never experienced a hospitalization from the patient’s lens. That concept…
Discussion
Over the course of three days, I recently had the joy of attending three live music concerts, each with its own distinct setting, energy, and story. I knew the performers, I loved the music, and I was grateful to be there, surrounded by the kind of shared excitement that only…
Discussion
Every March, I connect with a county worker to reassess my waiver, which is a federally financed Medicaid budget covering home- and community-based programs. The questions are always the same: How has my health been over the past 12 months? What do I like to do in my free time?…
Discussion
Weak bones in people with spinal muscular atrophy (SMA) may be driven by disrupted muscle-to-bone communication, a study in China showed. The researchers suggested that low levels of SMN protein — a hallmark of SMA — drive low levels of another protein, SNAP23, which in turn impairs the release…
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