Because I live with spinal muscular atrophy (SMA), I have used a power wheelchair for most of my life. As far as I can recall, I have had seven different chairs, each one unique in its level of comfort, durability, and advanced functions. I’ve always had a complicated…
Discussion
Proteins involved in producing histones, which help package DNA inside cells, may take on new roles in mature nerve and muscle cells, a U.S.-Polish study found. The findings could provide new clues about spinal muscular atrophy (SMA). Researchers found that as nerve and muscle cells…
Discussion
Being diagnosed with spinal muscular atrophy (SMA) 20-odd years ago was akin to a death sentence. But for the majority of my life with SMA, my health has been fairly stable. I’ve come to expect that, in the rare instances when I do get a cold, it will be…
Discussion
Managing a career, dating, and air travel for individuals with spinal muscular atrophy (SMA) comes down to three key tools: open communication, smart energy management, and proactive planning. These strategies were discussed during a recent webinar hosted by SMA News Today, where advocates living with the…
Discussion
In June, my parents and I huddled into our accessible van to head to the annual Cure SMA conference in Orlando, Florida. It’s always my most anticipated time of the year, filled with seeing friends, meeting new people, and spending late nights at the hotel lounge and by the…
Discussion
I have a really special and pretty large friendship caregiving team, which I write about a lot in this column. Because I live with SMA, I need plenty of help, and I am grateful for all the wonderful friends who do so much. Mostly, my caregivers are…
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