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    • Embracing My Inner Alien - Kevin Schaefer
    • Being Resilient - Jasmine Ramos
    • Soaring With Hope - Ari Anderson
    • Life, One Cup at a Time - Alyssa Silva
    • Wandering The Lines - Sherry Toh
    • The Wolf Finally Frees Itself - Brianna Albers
    • Caring Together - Connie Chandler
    • We’re Not in Kansas Anymore - Helen Baldwin
    • From Where I Sit - Halsey Blocher
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Featured Articles
Columns

It’s important to reflect on the past, and photos help me do that

Last month, I wrote about a whiteboard of collected memories I received as a gift when I graduated from college in 2005. It had 38 pictures on it that showcased the many life adventures I’d had up to that point. I noted that the whiteboard recently fell off the wall…

main graphic for column titled Discussion
Columns

This SMA Awareness Month, let’s reflect on how far we’ve come

Ready or not, we’re about to say “Adios!” to another month. Our daughter, Katie, and son-in-law, Paul, arrive today for a whirlwind visit, sending July packing with a bang. A few hours after Katie and Paul depart for their next destination, the rest of the family will be hurled into…

Main graphic for column titled Discussion
Columns

A lack of accessibility nearly caused me to miss my date with ‘Dracula’

I had a date with Count Dracula. An award-winning ballet adaptation of Bram Stoker’s immortal creation — “Dracula: Ballet at its Darkest” — was to arrive in my homeland of Singapore for the summer, and a friend of mine got wind of the news. The production promised an…

Two people look with love at a sleeping newborn in a hospital bassinet. Discussion
News

Combined newborn screening test spots 2 rare diseases

A combined newborn screening test for two rare diseases — spinal muscular atrophy (SMA) and severe combined immunodeficiency (SCID), a condition that leaves infants with little or no working immune systems — correctly identified every affected baby, with no missed or false diagnoses. The five-year Italian pilot screened 32,289…

Banner for Connie Chandler's column Discussion
Columns

Remembering the fun-filled summer of ’98 with my teenage caregiver

Do you remember the summer of 1998? It’s been a while, so let me remind you. It was the season of blockbuster movies like “Saving Private Ryan” and “The Mask of Zorro.” The airwaves were filled with hits by stars like the Backstreet Boys and Shania Twain,…

An oversized human hand holds a mouse alongside a rack of vials in a lab. Discussion
News

Prenatal SMA treatment improves outcomes but may need to continue

Treatment before birth with RG7916, a compound similar to Evrysdi (risdiplam), improved weight, muscle health, motor function, and survival in a mouse model of severe spinal muscular atrophy (SMA), a study found. However, treatment given only before birth, or prenatally, did not fully preserve numbers of motor neurons…

A banner for Alyssa Silva's column

Featured ColumnMy medical devices aren’t an invitation for people to stare at me

It’s uncomfortable when people stare at her medical equipment, but columnist Alyssa Silva has learned to flip the script.

Read the column

Vlogs

Watch the latest videos where patients with SMA share their personal stories and perspectives with the SMA community.

Watch on YouTube

The Spinal Muscular Atrophy Podcast

Listen to the latest episode of The Spinal Muscular Atrophy Podcast, hosted by forums director Kevin Schaefer.

Listen to more

Your SMA Community

Visit the SMA News Today forums to connect with others in the SMA community.

View Forums

Perspectives

  1. Main graphic for Discussion
    Columns

    It’s important to reflect on the past, and photos help me do that

  2. main graphic for column titled Discussion
    Columns

    This SMA Awareness Month, let’s reflect on how far we’ve come

  3. Main graphic for column titled Discussion
    Columns

    A lack of accessibility nearly caused me to miss my date with ‘Dracula’

  4. Banner for Connie Chandler's column Discussion
    Columns

    Remembering the fun-filled summer of ’98 with my teenage caregiver

  5. Banner for Connie Chandler's column Discussion
    Columns

    Finding joy in being there for someone who is there for me

  6. The banner for Brianna Albers' column depicts a wolf howling against a background of mountains and trees, with the words Discussion
    Columns

    Introducing my latest diagnosis: Arthritis of the right hip

View All Columns

Special Collections

A close-up view of a strand of DNA highlights its double-helix structure.

Spinal Muscular Atrophy and Genetics

Wheelchair illustration

Specialized Equipment for SMA Patients

A child in a wheelchair raises his arms above his head.

Living Well With SMA

  1. A close-up view of a strand of DNA highlights its double-helix structure.

    Spinal Muscular Atrophy and Genetics

  2. Wheelchair illustration

    Specialized Equipment for SMA Patients

  3. A child in a wheelchair raises his arms above his head.

    Living Well With SMA

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