Children and adults with spinal muscular atrophy (SMA), as well as their caregivers, may experience clinically relevant mental health symptoms, including anxiety and depression, a nationwide German study found. Among caregivers, those of patients with SMA type 1, the most common form of the disease, showed the greatest psychological…
Discussion
My daily schedule is full, so it’s important for me to use my time wisely. This allows me to enjoy fun activities and do the work I love. I face various challenges in balancing my time. Some can’t be changed, but I have found solutions to others. What I…
Discussion
Mindy Henderson has spent much of her life challenging the limits others have placed on her. When she was diagnosed with spinal muscular atrophy (SMA) — a genetic condition that causes muscles to weaken over time — as an infant, doctors told her parents that she might not live long…
Discussion
Researchers at Cedars-Sinai are working to develop a potential stem cell treatment for three teenage siblings in California with an extremely rare form of spinal muscular atrophy (SMA) for which there are no available therapies targeting the disease’s underlying cause. The Vehling trio — sisters Emilie, 19, and Maggie…
Discussion
Our third baby, Jeffrey, arrived May 18, 1997, three days after my 43rd birthday. He joined his siblings, Matthew, then 10, and Katie, then 7. Although the pregnancy was unplanned, my husband, Randy, and I warmed up effortlessly to the idea of another baby. We didn’t worry about our lack…
Discussion
A caregiver recently told me that the more she spends time helping me, the more she learns what I care most about. This longtime friend already knows that I care about faith, relationships, stories, advocacy, and sunshine, so what she was referring to are the tasks I need done because…
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