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  • About SMA
    What is SMA?
    • Causes
    • Symptoms
    • Diagnosis
    • Prognosis
    Types
    • Type 0
    • Type 1
    • Type 2
    • Type 3
    • Type 4
    Treatments
    • Approved treatments
    • Experimental treatments
    • Non-drug treatments
  • Living with
    Living with SMA
    Mental health
    Managing fatigue
    Sleep tips
    Speech therapy
    Specialized equipment
    Flying with a wheelchair
  • Community
    Perspectives
    • Embracing My Inner Alien - Kevin Schaefer
    • Being Resilient - Jasmine Ramos
    • Soaring With Hope - Ari Anderson
    • Life, One Cup at a Time - Alyssa Silva
    • Wandering The Lines - Sherry Toh
    • The Wolf Finally Frees Itself - Brianna Albers
    • Caring Together - Connie Chandler
    • We’re Not in Kansas Anymore - Helen Baldwin
    • From Where I Sit - Halsey Blocher
    Videos
    • Building your healthcare team
    • Taking control of your healthcare
    • SMA love story
    • Smart home technology
    • Final SMA gift
    • Theme park preparation
    Features
    • Speaking out for the SMA community
    • Spinal cord stimulation
    Vlogs
    The SMA podcast
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    Quizzes
    • Genetics, diagnosis, and treatment
Breaking News MDA Clinical & Scientific Conference Read More
Featured Articles
Columns

Don’t underestimate the power of disability representation

Nearly anyone that knows me knows that pasta has been my lifelong favorite food. We stock a variety of shapes and flavors in the pantry so I always have different options to choose from. Among them are single serving, microwaveable mac ‘n cheese cups. A few weeks ago, I realized…

An illustration of children, three standing and one in a wheelchair, holding hands.
News

New study explores links between BMI and motor function in children with SMA

Children with spinal muscular atrophy (SMA) showed trends suggesting that nutritional status may be linked to motor function, according to a study in Poland that tracked 38 children over one year. Researchers found that increases in BMI — a measure…

Column banner for Jasmine Ramos Discussion
Columns

What Eric Dane’s passing reminded me about living with SMA

Some losses don’t give you time to prepare. The sudden passing of Eric Dane, a Hollywood icon who couldn’t escape the ugly grip of amyotrophic lateral sclerosis (ALS), is one of them. It’s the kind of news that doesn’t just make you sad. It unsettles you. It pulls…

main graphic for column titled Discussion
Columns

Reflecting on our SMA assignment and lessons from Dr. Seuss

March seems to stretch to infinity, but one bright spot is the promise of spring. It’s also National Reading Month, in honor of Dr. Seuss’ birthday. Our daughter-in-law, Jill, is a literacy specialist at our elementary school. She’s always involved with school projects, voluntarily or otherwise. During a…

A red teddy bear rests against the side of a sleeping infant, whose head is cushioned on a pillow.
News

SMA treatment combo helps boy with type 0 mark third birthday, and walk

A combination of approved treatments, alongside early physical therapy, was successfully deployed to help treat a boy with spinal muscular atrophy (SMA) type 0 in Japan. Type 0 is the most severe form of SMA, marked by symptoms that start in the womb prior to birth. Without…

Banner for Connie Chandler's column Discussion
Columns

The logistics of hugging a friend with SMA

I’m getting ready for a trip to see my dear friend Christi get married this month. It’ll be the first time I meet her soon-to-be-husband in person, and from what she’s shared about him, I am so excited for that moment. Apparently, she has told him a lot about me…

main graphic for column titled

Featured ColumnCaring for students, a baby with SMA, and pets who need ‘a little extra’

Columnist Helen Baldwin has always been drawn to caring for those who need a little extra help, be it a shelter dog or a baby with SMA.

Read the column

Vlogs

Watch More

The Spinal Muscular Atrophy Podcast

Listen to the latest episode of The Spinal Muscular Atrophy Podcast, hosted by forums director Kevin Schaefer.

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Your SMA Community

Visit the SMA News Today forums to connect with others in the SMA community.

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Perspectives

  1. Banner image for Halsey Blocher's column Discussion
    Columns

    Don’t underestimate the power of disability representation

  2. Column banner for Jasmine Ramos Discussion
    Columns

    What Eric Dane’s passing reminded me about living with SMA

  3. main graphic for column titled Discussion
    Columns

    Reflecting on our SMA assignment and lessons from Dr. Seuss

  4. Banner for Connie Chandler's column Discussion
    Columns

    The logistics of hugging a friend with SMA

  5. The banner for Brianna Albers' column depicts a wolf howling against a background of mountains and trees, with the words Discussion
    Columns

    The woes of adding a new ingredient to my medicine cocktail

  6. Main graphic for column titled Discussion
    Columns

    What a wooden stool taught me about people’s behavior

View All Columns

Special Collections

A close-up view of a strand of DNA highlights its double-helix structure.

Spinal Muscular Atrophy and Genetics

Wheelchair illustration

Specialized Equipment for SMA Patients

A child in a wheelchair raises his arms above his head.

Living Well With SMA

  1. A close-up view of a strand of DNA highlights its double-helix structure.

    Spinal Muscular Atrophy and Genetics

  2. Wheelchair illustration

    Specialized Equipment for SMA Patients

  3. A child in a wheelchair raises his arms above his head.

    Living Well With SMA

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