“There’s no such thing as a free lunch,” I used to hear my parents say. “Even if it’s free for you, someone else is paying for it.” From the moment I could comprehend the value of a single cent, my parents began drilling financial advice into my head. They wanted…
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Jeffrey Selby is a proud husband to his wife, Angie, whom he married in 2017. Together, they’ve built a life full of love and laughter. Jeff, a licensed real estate agent, has spinal muscular atrophy (SMA) type 3. He spends his time supporting others with the disease.
“OK, so just pick up my arm and rest my elbow on the table right here, with my hand up toward my face. That’s right. Now do the same thing with my other arm. Yeah, like that, but move my elbows closer together. Great! Now pick up my coffee mug…
My mother dubbed me a Pollyanna many years ago. I loved the 1960 movie “Pollyanna,” but don’t remember if I identified with the orphaned character’s perpetual, cheery optimism or merely adored Hayley Mills, the actress who played her. In one scene, Pollyanna (sent to live with her wealthy,…
A quantitative MRI scan, which shows detailed images of muscles, can be used to track changes seen with Spinraza (nusinersen) treatment in children with spinal muscular atrophy (SMA), according to a new study from China. SMA children started on the approved therapy at a younger age also were found to…
“I feel like my body is gaslighting me,” I said to my dad in frustration after checking my MRI results. While I was hoping to get some answers, there in plain sight were the words “findings are unremarkable.” Of course, this news was ultimately good. Unremarkable findings meant nothing serious…
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