It takes a rather large team of specialists and various medical professionals to help manage my care alongside me and my mom, who’s my primary caregiver. That means I have to attend lots of doctor appointments. I’d like to tell you how many of those appointments and medical meetings I…

As I lay in bed, willing my body to find some energy to write this column, a notification popped up on my phone. According to USA Today, a “quadruple whammy of viruses” had been spreading across the country. All I could do was roll my eyes. After the past several…

Empathy is often described as the ability to imagine yourself in another’s shoes, see the world through their eyes, and feel the weight of their experiences as if they were yours. But empathy is more than just a fleeting sense of understanding. It’s the heartbeat of human connections. It bridges…

I’ve mentioned before that I don’t always know what I’ll cover in this column when the time comes. It sure eases the anxiety level when I have a clue, though. Our SMA assignment with our third baby, Jeffrey, led me to appreciate “angel intervention” in all facets of…

Blood levels of creatinine, a byproduct of normal muscle function, may be a potential biomarker of disease severity and treatment response in adults and adolescents with spinal muscular atrophy (SMA), a study in China shows. Creatinine levels, overall, strongly associated with disease severity across two years of follow-up, and…