Aimee

Hey!  I’m an SMA parent and I’ve wondered about taking my daughter to a chiropractor as well.  I haven’t so far because she has a lot of sensory issues and anxiety.  I would just say that if you decide to go, get some recommendations for a gentle chiropractor from people you know in your area.  They do adjustments on babies without having to…[Read more]

Oh wow I just now saw these responses.  Thank you so much for the encouragement!

Following… I’ve been wondering about the same thing!

I have felt the same way about my daughter’s treatment!  She was scheduled for last week and I kept wishing her doctor would just tell me exactly what to do.  She’s doing the SRK-015 trial and had that scheduled last week as well so we decided to go ahead with that one and postpone the Spinraza.  Like you said, it’s hard when we don’t know when it…[Read more]