Andrew

For me when I was on Spinraza I always felt a boost in stamina/energy almost immediately after the LP and for the first few days even though there was a recovery period for my lower back that ranged from a few days to a few weeks I always felt the effects of the medicine the most in the first few days. I feel like it still worked pretty well for…[Read more]

I agree that the old SMA type system is super outdated and for me personally and has caused me issues. I was diagnosed with SMA type III when I was a child and the few years leading up to my growth spurt I struggled to walk independently and around the time of my growth spurt at age 12 is when I pretty much lost my ability to walk independently.…[Read more]