Activity

I’m so sorry to hear about your experiences Lupa. Hopefully, you get things squared away soon because that just isn’t fair. If only things could be easier for us!

I’ll be there! We’re staying at the Yacht and Beach Club, but I’ve heard both are good. So excited!

Thanks Patrick!  I don’t think it’s a topic that’s discussed much.  Good suggestion in regards to estate planning as well.  After my dad passed my mom met with a lawyer to discuss things in the event something would happen to her.  Not something you want to do, but certainly gives you piece of mind.

Figure I’ll tack on my wheelchair story here too. I wrote a post a while ago about getting my chair approved, it finally did in late October and they delivered the chair, a permobil M3, the day before Thanksgiving. I could already tell something was off when he brought it in. I requested the seat to be as low as possible because I live by myself…[Read more]

We don’t have plans to go this year, but I’m sure it’ll be a great time. I’ve always enjoyed the ones at Disney World. I’ve never stayed at those resorts, but I love the boardwalk area. Super accessible and a lot of fun! Also, a lot of people don’t know this, but there’s a public back entrance to Epcot along the boardwalk. It’s walking distanc…[Read more]

This might be the most important post I have read on this forum. If one’s parents, family members or spouse are their primary caregivers one must have a plan to deal with inevitable day when they are too old to do the job or when they pass away. I live thousands of miles away from my family and my parents are elderly so I already have a support…[Read more]

With the impending blizzard, it certainly sounds like something to look forward to.  Tempted to stowaway with you guys, lol.  We don’t travel much, so I don’t have good advice for you other than to say have fun!

Thanks for all the info everyone!  Rachel, how long have you had one?  As Halsey mentioned I’m not crazy about the idea of surgery even if it’s just minor.  Having a foreign object and another hole in my body makes me hesitant as well.  I still hate my feeding tube after all.  It is great to have options though as Adnan pointed out.  As Kelly…[Read more]

Congrats on the scholarship! I’ve stayed at both Disney resorts and they’re equally awesome. That being said, I personally loved the Boardwalk because I love anything 1920’s themed. There’s also some nightlife over there— the dueling piano bar is so fun! But this can be easily accessed from Yacht and Beach.

Is the conference at Swan and Dolphin?…[Read more]

Hey Rachel, Lauren Bakken is Kinova’s full time family advocate and she works on appeals, including help with drafting the appeal letter. Contact her at [email protected]. She should be able to help.

Like DeAnn said, definitely make a list of what you will use it for. Make it as detailed as possible. Include anything you can think of, why you need the arm to do it, and why you need to that task at all. I also recommend referencing independence. Explain how the arm will provide you with that, and, as crazy as this might sound, why that…[Read more]

I’ve never done a full on detox, but definitely think boundaries are important! I always no when I’m spending too much time with my technology. It makes me feel tired, distracted, and just less cheerful. Stepping back and doing some other things for a while makes me feel more focused, more relaxed, more positive, and happier. I love books so tha…[Read more]

I guess I’m old school as well. I’m not terribly familiar with any of this either. But I’m not fond of the idea of having any more surgeries, no matter how minor. And since I don’t usually have problems with UTIs or having someone to help take me, it doesn’t really seem necessary for my specific situation. One difficulty that I sometimes encounter…[Read more]

Brianna, check out the post just recently by DeAnn regarding SPC’s!