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Hey Adnan. Well, it’s not that long a flight, but also I wear a catheter everyday. I never use public bathrooms. Thanks for your concern though. I appreciate it.

Thanks! And yeah, fingers crossed that the airline folks take proper care of it.

Kevin can you spend 12 hours without water?

I’m the oldest of my siblings and cousins, so all of them. Since they’ve all been around me since they were born, my condition isn’t foreign to them, which is nice.

Good luck man. I would say just be as vigilant as possible about taking care of your chair. I know it’s out of your hands for the most part.

Great tips! Thank you!

Thank you!

• Don’t forget to pack your charger.
• Check that the outlet you use for your charger in your hotel room stays on when the room light is turned off. Otherwise, you will find yourself running out of power and wondering why.
• Remove your seat cushion and keep it with you – either sit on it so your back is at a better height compared to the seat…

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No tips as I have zero experience with this. Just wanted to say good luck and have fun!

Thanks Shawn! Yeah, it is a fun subject to make jokes about.

Do you wear a chest strap? That helps me a lot in car rides.

I hear ya! Some friends drive a little faster than others, and this is something I have to make them aware of. With haircuts, I’ve had the same barber my entire life, which definitely helps. But I can see where that’s tricky too.

Yeah, it’s tough. It’s a struggle for a lot of us, but PT has been a big help in this regard.

Great tips. I don’t necessarily follow them, but if anyone has concerns going into Spinraza it’s certainty good advice to give a whirl.

Great article Kevin, I have a friend that jokes with me about being a bobblehead especially when riding in my van.  My head control has improved as well since being on Spinraza, but occasionally it will fall forward if we have to stop quickly in my van.  My friend suggested I get a strap to hold my head up while riding in a vehicle to prevent a n…[Read more]