Activity

As a continuation of sorts from my last post, I’m thinking I MAY have to see a dentist and get checked out. I’ve also added possible cavities to my ailments. Love that for me. (Sarcasm)

However, if I’m being honest, I’m really worried about seeing a dentist with all that’s going on these days. The thought of having my mask off to have someone i…[Read more]

My uncle just lost his short battle with cancer.  His funeral is Friday with visitation Thursday evening.  I still don’t feel comfortable in big gatherings. Not to mention several family members are anti-maskers.  So, I’m not taking the risk and watching the live streamed funeral.  A first for me.  I’m grateful it’s an option.  Despite my objec…[Read more]

School as we’ve known it has changed exponentially in the last 6 months. In some ways, with virtual learning on the forefront of everyone’s minds, some may even agree that it has changed for the better.

When I was in school, virtual learning didn’t exist. During the winter months, I’d homeschool myself in order to stay healthy, so I know th…[Read more]

Horton is officially a Minnesotan.  Despite being more well-traveled than I, his whining indicated he disliked the long car ride.  Luckily, that’s likely to be the extent of our long-distance road trips.  Since Canine Companions has their own breeding program he was born in California.  Then his his puppy raisers from Kansas loved him up, tra…[Read more]

Hi everyone! I finally got around to writing a column on “Disability Visibility” — I hope it was worth the wait! I can’t tell you how much I enjoyed the anthology. It was not only engaging but healing, especially in times like these. I highly recommend it.

Have you read “Disability Visibility”? If so, what did you think?

In Michael’s latest video, he explains the differences between Evrysdi and Spinraza, both SMA therapies. Michael talks about everything from the function of each drug, to administration methods. Hope you all enjoy watching this episode!

Do you have any further questions about either of these…[Read more]

Hey everyone! Hope you all had a great weekend.

Since my next Spinraza injection is Wednesday, I’m trying to be extra cautious about staying hydrated and eating healthy. I know it’s an obvious thing we should do with or without SMA, but it can be tedious sometimes. When you factor in getting to the bathroom or catheterizing, caregiver ava…[Read more]

Does anyone here deal with TMJ? I have been a mess these last few weeks, and I’m so worn out from the pain I’ve experienced. I don’t know why but I always get TMJ at this time of year.

My guess is that the weather is getting colder and I’m clenching my jaw more in my sleep. There’s also the main side effect of 2020… stress! So I have a feel…[Read more]