SMA News Today Forums | chelsea-chandanais | Activity https://smanewstoday.com/forums/members/chelsea-chandanais/activity/ Activity feed for chelsea-chandanais. Fri, 24 Apr 2026 02:47:43 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 8c348725c241c289f44f9d9c88c9bb17 chelsea-chandanais replied to the discussion Rash? in the forum Evrysdi (risdiplam) https://smanewstoday.com/forums/forums/topic/rash/#post-27000 Thu, 03 Jun 2021 02:37:42 -0500 Reply to Rash?

I had a rash that was mostly on the top of my left foot and very itchy. Benadryl did not help and anti-itch lotions only took the edge off for a short time. I let my PAL know so that she could report it and also sent my neurologist a message, but I am allergic/sensitive to just about everything, so, while they both agreed that there was… Read more

]]> a0d6a9ba1ab1f46847c5e5c4757a9417 chelsea-chandanais replied to the discussion Problems Breathing With a Face Mask in the forum COVID-19 and SMA https://smanewstoday.com/forums/forums/topic/problems-breathing-with-a-face-mask/#post-23624 Thu, 21 May 2020 20:12:45 -0500 Reply to Problems Breathing With a Face Mask

In addition to SMA, I have severe asthma and I can’t handle a mask either. I had to wear one once before all this started when I was at the doctor for a particularly bad case of bronchitis several years ago. It was way too hard to breathe, but I thought maybe it was just because I was sick and my asthma was flaring more. So, I ordered a mask… Read more

]]> 1b85d013cd50579f8c467539b6b9df76 chelsea-chandanais replied to the discussion Liquid Albuterol and Energy in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/liquid-albuterol-and-energy/#post-23546 Thu, 14 May 2020 22:46:48 -0500 Reply to Liquid Albuterol and Energy

I take Albuterol Sulfate tablets rather than liquid Albuterol for stamina. I started it in November and haven’t noticed any more tremors than I have always had. I have severe asthma and use 2 inhalers daily plus a Xopenex rescue inhaler and 3 different nebulized medications daily: Pulmicort, DuoNeb, and Xopenex (I was switched from Albuterol… Read more

]]> 800f2f7d3ba593f12ec1b3e54883380f chelsea-chandanais replied to the discussion Risdiplam - Oral Treatment for SMA Awaiting FDA Approval in the forum Evrysdi (risdiplam) https://smanewstoday.com/forums/forums/topic/risdiplam-oral-treatment-for-sma-awaiting-fda-approval/#post-22790 Thu, 19 Mar 2020 20:48:15 -0500 Reply to Risdiplam - Oral Treatment for SMA Awaiting FDA Approval

If Risdiplam is approved, I plan to switch. I have gotten spinal headaches after every Spinraza injection and the last two required blood patches. Before my last injection, the radiologist said that if I still got a spinal headache despite him trying an atraumatic needle, he would try not removing any CSF next time. Even if I don’t get a… Read more

]]> 389d32e06db2b6ff24576d1b7f881350 chelsea-chandanais replied to the discussion I’m Getting a New Wheelchair! in the forum Assistive Technology https://smanewstoday.com/forums/forums/topic/im-getting-a-new-wheelchair/#post-21909 Thu, 09 Jan 2020 17:37:23 -0600 Reply to I’m Getting a New Wheelchair!

I am starting the process to get my first wheelchair and I am a little nervous. I have done some research and I am hoping that I will be able to get the new Quantum Stretto with iLevel.

]]> 3aba6a35fe1c86f64c0726fbb4bdb336 chelsea-chandanais became a registered member https://smanewstoday.com/forums/activity/p/8042/ Fri, 27 Dec 2019 14:57:09 -0600 1 7a450ec14506f1218a0b1558a62798fa chelsea-chandanais updated their profile https://smanewstoday.com/forums/activity/p/8041/ Fri, 27 Dec 2019 14:02:36 -0600 0