SMA News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search

Delphine Andrews

Home Members Delphine Andrews
show less show more
Profile picture of Delphine Andrews

@delphine

  • Activity
  • Profile
  • Friends 0
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic Let’s Talk About Dreams and Disability in the forum Adults ​With​ ​SMA 1 month, 2 weeks ago

    I also float or am just sitting down somewhere. So validating to know others experience the same. Always thought it was just me.

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic Summer Must Haves in the forum SMA Assistive Technology/Equipment 1 month, 2 weeks ago

    no not too bad. I like that if I am sweaty, I can just get a new pillowcase rather than having to wash and change the cushion cover.

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic Summer Must Haves in the forum SMA Assistive Technology/Equipment 1 month, 2 weeks ago

    So I have recently tried a new hack because I am tired of all my skirts and pants getting ripped. I bought a set of black cotton pillowcases and lay one over my cushion before getting in the chair. Then my care providers use the pillowcase to move me where I need to go. So far it has been working well.

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic No Change is a Good Thing in the forum SMA Treatments: Questions, Stories, etc. 8 months, 2 weeks ago

    I have been on Risdiplam for about 6 months now. I didn’t really have any of the side effects with it but I feel like I might be getting slightly weaker. I have also been having hand spasms. I am going in for an assessment in January to hopefully see. I don’t feel like I had this kind of issue with Spinraza. The doctors also say it could take up…[Read more]

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic SMA Typing (as in type 1, 2, 3 or 4) in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 9 months, 4 weeks ago

    I was told I was a 2.5, whatever the means. It is so arbitrary. It just goes to show that there are some things even the “experts” don’t know even if they try to classify it.

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic Starting the Search for New Caregivers in the forum SMA​ ​Parents​ ​and​ ​Caregivers​ 9 months, 4 weeks ago

    I had to go through this a few years back and it was tough for sure. Mentally, it took a toll on me. But it is one of those things that I had to realize was out of my control. I have to accept that I will always need personal care providers (at least until robot technology advances enough to fill this need – fingers crossed). Therefore, looking…[Read more]

  • Profile picture of Delphine Andrews

    Delphine Andrews joined the group Group logo of SMA PatientsSMA Patients 10 months ago

  • Profile picture of Delphine Andrews

    Delphine Andrews replied to the topic Anyone Watch Ordinary Joe? in the forum Disability in Media 10 months ago

    I have been watching it mostly for the representation, which I think is great. The show is ok otherwise. But the son is definitely my favorite part.

  • Profile picture of Delphine Andrews

    Delphine Andrews became a registered member 10 months ago

Profile Photo Shinji78

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Day 15 of #31DaysofSMA: Living Through the Journey of a King With SMA Type 2 by Kevin Schaefer
  • Day 14 of #31DaysofSMA: Having Such a Tightknit Community Makes All the Difference by Jessie Madrigal Fletcher
  • Day 13 of #31DaysofSMA: How I Use Superior Motivational Attitude to Achieve Happiness by Jessie Madrigal Fletcher
  • Day 12 of #31DaysofSMA: How SMA Made Me Into a Scientist by Jessie Madrigal Fletcher
  • Day 11 of #31DaysofSMA: Being a Front-row Mom Is My Greatest Joy by Jessie Madrigal Fletcher


Members

Newest | Active | Popular
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 2 hours, 7 minutes ago
  • Profile picture of Alyssa Silva
    Alyssa Silva
    Active 17 hours, 5 minutes ago
  • Profile picture of DeAnn R
    DeAnn R
    Active 18 hours, 50 minutes ago
  • Profile picture of Blake Watson
    Blake Watson
    Active 21 hours, 16 minutes ago
  • Profile picture of Lupa F
    Lupa F
    Active 3 days, 19 hours ago

Forums

  • 31 Days of SMA 2022
  • Coronavirus (COVID-19) and SMA
  • Adults ​With​ ​SMA
  • SMA Forums Welcome Lounge
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • 31 Days of SMA
  • Flash Briefings and Podcasts
  • SMA​ ​Parents​ ​and​ ​Caregivers​
  • SMA Treatments: Questions, Stories, etc.
  • Roche and Genentech- Evrysdi (risdiplam)
  • Weekly Wins
  • Spinraza
  • Would You Rather?
  • Zolgensma (AVXS-101) News and Information
  • Raising Awareness of SMA
  • The SMA News Today YouTube Channel
  • SMA Assistive Technology/Equipment
  • Disability in Media
  • SMA​ ​and​ ​Dating/Relationships
  • Polls & Quizzes
  • Going​ ​To​ ​College​ ​When​ ​You​ ​Have​ ​SMA
  • SMA Therapy News
  • Most popular topics
  • Topics with no replies

Recent Replies

  • How do you define success?
  • Day 10 of #31DaysofSMA: I Am So Lucky That This Community Exists
  • Day 10 of #31DaysofSMA: I Am So Lucky That This Community Exists
  • Day 9 of #31DaysofSMA: Learning About the Wonders of the World
  • Day 9 of #31DaysofSMA: Learning About the Wonders of the World

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot