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  • David Mitchell posted a new activity comment 1 month, 3 weeks ago

    Thanks. I’ve actually been keeping track of the website for several years now just never formally registered. I’ve been waiting for Risdiplam to get FDA authorization but have been getting Spinraza dosings since late 2017. I write about people with Spinal Motor Atrophy in my third book, “The Biopolitics of Disability” (U of Michigan Press, 2016)…[Read more]

    • I think many of us are equally excited for risdiplam. Definitely an exciting time in the community. And glad you enjoyed our recent videos! Yeah, insurance hassles are certainly a whole other beast, and it’s something we discuss here frequently. We have a sub-forum devoted to assistive technology, which you can check out here. Feel free to post a…[Read more]

  • David Mitchell became a registered member 1 month, 4 weeks ago

    • Hey David, welcome! Thanks for joining our community here, and I hope you find it helpful. If you have any questions, feel free to reach out to DeAnn, Alyssa, or myself. Have a great day!

      • Thanks. I’ve actually been keeping track of the website for several years now just never formally registered. I’ve been waiting for Risdiplam to get FDA authorization but have been getting Spinraza dosings since late 2017. I write about people with Spinal Motor Atrophy in my third book, “The Biopolitics of Disability” (U of Michigan Press, 2016)…[Read more]

        • I think many of us are equally excited for risdiplam. Definitely an exciting time in the community. And glad you enjoyed our recent videos! Yeah, insurance hassles are certainly a whole other beast, and it’s something we discuss here frequently. We have a sub-forum devoted to assistive technology, which you can check out here. Feel free to post a…[Read more]

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