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Holly replied to the topic Irritated Pits in the forum Adults With SMA 4 months, 1 week ago
tried using fingers to apply it instead of the stick? naked deodorant works good for sensitive skin.
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Holly replied to the topic Where are you from? in the forum Adults With SMA 4 months, 2 weeks ago
i’m from virginia in the blue ridge mountains
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Holly replied to the topic Medical Marijuana in the forum Adults With SMA 5 months ago
you won’t feel a thing on edibles, but don’t take one if you have plans later.
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Holly replied to the topic Hand Falling Off Joystick in the forum SMA Assistive Technology/Equipment 10 months, 2 weeks ago
my joystick is shaped like goal post. that really helped.
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Holly replied to the topic Let’s get to know each other! in the forum Adults With SMA 1 year, 2 months ago
1. Virginia, US
2. 23 but i turn 24 in exactly a week. i have a mutated gene. the condition doesn’t have a name because its newly discovered.
3. i love that being disabled has given me a community a an identity that has given me a unique world view
4. dogs. parrots weren’t an option but there awesome too.
5. anything having to do with nature
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Holly replied to the topic Jaco Denial #2 in the forum SMA Assistive Technology/Equipment 1 year, 3 months ago
they told me no because it “wouldn’t make me better”
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Holly replied to the topic Difficulty Remembering the Past in the forum Adults With SMA 1 year, 3 months ago
the same thing happened to me. i thought it was because of surgical complications but sometimes it feels like the memories are there and it just hurts to remember.
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Holly replied to the topic The Disability Concept in the forum Adults With SMA 1 year, 7 months ago
i agree with ariana. i have an identity and a culture that Is unique to those around me. its also made me pay more attention to social issues and i feel like i’m a better person because of it.
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Holly changed their profile picture 1 year, 9 months ago
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Holly started the topic phone mount recommendations in the forum Adults With SMA 1 year, 9 months ago
i’m looking for a new wheelchair phone mount, one thats easy to take off and put back on, bonus if I can attach it to my bed. any recommendations?
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Holly replied to the topic Keeping your feet warm in the forum Adults With SMA 1 year, 9 months ago
Dennis, have you tried billy footwear
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Holly replied to the topic SMA Patients of Color? in the forum Raising Awareness of SMA 2 years, 2 months ago
here are two girls
https://www.instagram.com/nolimitsg2/?hl=en
https://www.instagram.com/stella_lacaps/?hl=en
Seriously though why are disabled poc so hard to find on instagram. it makes me a little suspicious.
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Holly replied to the topic States Reopening: What’s Your Take? in the forum Coronavirus (COVID-19) and SMA 2 years, 3 months ago
I don’t know if I’ll wait for the vaccine, but I’m not going out any time soon
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Holly replied to the topic Looking for Books By Disabled Writers in the forum Disability in Media 2 years, 3 months ago
sorry forget one
The Girl From Aleppo, its a memoir from Nujeen Mustafa, a girl with cerebral palsy, who fled Syrian war in a wheelchairbonus: Just The Way You Arm by Alison M Boot, I have not read it yet. It seems to be a fantasy romance. I don’t know if its good or not.
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Holly replied to the topic Looking for Books By Disabled Writers in the forum Disability in Media 2 years, 3 months ago
This Is Not A love Scene by S.C. Megale both the author and the main character have SMA
Accidents of Nature, which takes place at a disabled summer camp by Harriet McBryde Johnson, a notable disability rights activist
Good King Bad Kings by Susan Nussbaum, another activist, about a nursing home for disabled kids (kinda dark)
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Holly replied to the topic Jaco or IARM in the forum SMA Assistive Technology/Equipment 2 years, 3 months ago
They’ve contacted me back. I’m going to pursue it further. It might be a bit cheaper.
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Holly started the topic Jaco or IARM in the forum SMA Assistive Technology/Equipment 2 years, 3 months ago
Hi, a lot of y’all have tried Jaco right? Has anyone looked in into the IARM?
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Holly replied to the topic Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum The SMA News Today YouTube Channel 2 years, 4 months ago
What about SSI and medicaid, how didn’t you loose benefits with fundraising
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Holly replied to the topic Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum The SMA News Today YouTube Channel 2 years, 4 months ago
did y’all have to go through a dealer too?
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Holly replied to the topic Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum The SMA News Today YouTube Channel 2 years, 4 months ago
How did you get it for 53,000? When I tried it was 80,000
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