Jeremy

I started Evrysdi on June 15th (my first attempt at treatment).  Can’t say I’ve noticed any clear effects so far, positive or negative.

Avoiding my more/potentially controversial favorites (political, dark humor, etc)…

Sean Carrol’s Mindscape – Wide range of topics but Sean is a theoretical physicist, professor at Caltech, and proponent of Everettian (“many worlds”) Quantum Mechanics.

Very Bad Wizards- A psychologist and a philosopher having mostly casual convers…[Read more]

I’m far from an expert so please take with a grain of salt…

I believe the genetic test would only be needed to measure the numbers of SMN2 gene copies, where as the Risdiplam works by increasing the SMN protein levels.  I would think that measuring protein levels would be pretty straightforward with a blood test (but it may be more comp…[Read more]

I haven’t personally noticed any drowsiness from the Centirizine but IIRC I have seen it mentioned as a possible side effect.

Purely anecdotal but between myself and 4 or 5 friends I’ve asked we all prefer Zyrtec (Cetirizine) over Claritin (which did nothing for me) or anything else we’ve tried.  It doesn’t completely alleviate my symptoms but it’s the only thing that’s really seemed to help at all.

I think I’d have to move to somewhere with the most temperate climate possible just to keep my internet.  Couldn’t go without my online gaming…  Everything else I could give up, but not that.