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joan replied to the topic No Change is a Good Thing in the forum SMA Treatments: Questions, Stories, etc. 8 months, 2 weeks ago
Thank you DeAnn… I will definitely let you know what I decide.. I have a virtual appointment with my neurologist the first week of January..
Joan
Stockton NJ
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joan replied to the topic No Change is a Good Thing in the forum SMA Treatments: Questions, Stories, etc. 8 months, 2 weeks ago
Good afternoon every one, I had been on spinraza for a couple of years and felt good and even a little stronger! I then switched to evrysdi since it sounded great, so easy compared to the spinraza procedure….I now feel much weaker and may go back on spinraza, not sure and very confusing. I also wonder if I went back to spinraza if I would ga…[Read more]
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joan replied to the topic Stomach Issues on Evrysdi in the forum Adults With SMA 1 year, 6 months ago
Good afternoon everyone. I have just started to have diarrhea problems and noticeable weakness in my arms.I was on spinraza for about 4 years and I wish I had stayed on it even though it is a pain to get to the hospital,whole procedure during the day but was grateful for it I went on Evrysdi the beginning of November and just started to have these…[Read more]
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joan became a registered member 1 year, 6 months ago