SMA News Today Forums | patricia-hall | Activity https://smanewstoday.com/forums/members/phall/activity/ Activity feed for patricia-hall. Mon, 06 Apr 2026 04:12:39 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 397e26b27e08105ac1529e23128176fc patricia-hall replied to the discussion Colonoscopy -Yikes! in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/colonoscopy-yikes/#post-26387 Sat, 27 Mar 2021 02:12:07 -0500 Reply to Colonoscopy -Yikes!

Thanks Dennis – this is helpful to know and I appreciate you sharing your experience with this procedure. I am hoping to get a second opinion from a gastroenterologist that might be willing to consider other screening alternatives. I’ve heard there is a special CT scan that some doctors use, so maybe I can find other options.

]]> e49615f95d516326f515de4b5dc82d01 patricia-hall started the discussion Colonoscopy -Yikes! in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/colonoscopy-yikes/ Fri, 26 Mar 2021 01:05:35 -0500 Colonoscopy -Yikes!

I recently started having some G.I. issues, and now my gastroenterologist insists that the next step is a colonoscopy! I am wondering if any of you have had this procedure and if so, hoping you will share your experience. I have heard that the prep is awful, but in addition, I am very concerned about having to be sedated. I do plan to discuss… Read more

]]> 08176fec1b7c1a8294dc59115af63e05 patricia-hall replied to the discussion Spinraza & Medicare Coverage in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/spinraza-medicare-coverage/#post-20595 Mon, 16 Sep 2019 05:14:30 -0500 Reply to Spinraza & Medicare Coverage

This is great news!

I was told that Medicaid does cover it, but had not been able to get a definitive answer from Medicare.
I have had several setbacks and much hesitation about moving forward with Spinraza. Hopefully, I can now proceed with the treatment.

 

]]> a3384d2a33e0cfdf113d6fbb240f376f patricia-hall started the discussion Spinraza & Medicare Coverage in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/spinraza-medicare-coverage/ Sun, 15 Sep 2019 19:43:01 -0500 Spinraza & Medicare Coverage

Hello everyone , hope you’re enjoying the weekend!
I have been approved for Spinraza by my private insurance. However, it will run out in November, at which time I will be eligible for Medicare. Before beginning, I want to be sure that future treatment will be paid for by my health plan. Do any of you know if Medicare covers Spinraza? I have… Read more

]]> f29336cba55d9079ace43f732f5b6e02 patricia-hall started the discussion Bathroom Safety: Shower Chairs in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/bathroom-safety-shower-chairs/ Tue, 08 Jan 2019 20:17:48 -0600 Bathroom Safety: Shower Chairs

Happy New Year! Hope 2019 is off to a great start for you!
I am seeking recommendations on finding a company to build a “custom-made” shower chair. We recently renovated our bathroom and my previous bathing system no longer works well. I have contacted several local providers and explored many medical equipment companies online, but all… Read more

]]> ee1ddc99f36572105dd75df0cb8247eb patricia-hall joined the group Research and Development https://smanewstoday.com/forums/activity/p/3804/ Thu, 29 Nov 2018 23:59:14 -0600 0 c6c10db4c622bd71ecbd31866447c3ff patricia-hall joined the group SMA Patients https://smanewstoday.com/forums/activity/p/2769/ Mon, 24 Sep 2018 02:44:32 -0500 0 58468206c782dd4cfb115b38e8bc0cd9 patricia-hall posted a new activity comment https://smanewstoday.com/forums/activity/p/2500/#acomment-2767 Mon, 24 Sep 2018 02:27:08 -0500 Hi Kevin,

Thank you so much for reaching out to me. Sorry for my delayed response, I celebrated my 56 birthday this past week, and am just now getting back into my usual routine with checking messages. I have enjoyed the forums and found much of the information to be very helpful. There are many topics that I continue to search and hoping to… Read more

In reply to - patricia-hall became a registered member ]]> 4641ead3afd4255b8a52419f0094eae9 patricia-hall and mike-huddleston are now connected https://smanewstoday.com/forums/activity/p/2589/ Mon, 10 Sep 2018 00:45:13 -0500 0 910cc77e74051ccdd9680c187b8e0730 Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2586/ Sun, 09 Sep 2018 22:59:07 -0500 0 0970c9508f9f22f6613193347ae3579f Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2585/ Sun, 09 Sep 2018 22:32:15 -0500 0 9911794b6f55bee8bca117d307dd960a Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2584/ Sun, 09 Sep 2018 22:14:34 -0500 0 0abefaac8567a4557c6ac6e7e477ea65 Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2583/ Sun, 09 Sep 2018 22:09:27 -0500 0 01e9bfd6d99d5f73ccba36e21a287826 Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2582/ Sun, 09 Sep 2018 22:03:54 -0500 0 af66f5741557fa81e828629fe50d08bf Patricia Hall changed their profile picture https://smanewstoday.com/forums/activity/p/2581/ Sun, 09 Sep 2018 21:59:30 -0500 0 a3b6f831c1b13321e02d7bcef9a9a6ed patricia-hall posted a new activity comment https://smanewstoday.com/forums/activity/p/2500/#acomment-2564 Fri, 07 Sep 2018 03:06:16 -0500 Thank you Ryan! Looking forward to connecting–

In reply to - patricia-hall became a registered member ]]> c9e0c55f9d433444aa12e1cac8a31dfc patricia-hall posted a new activity comment https://smanewstoday.com/forums/activity/p/2500/#acomment-2563 Fri, 07 Sep 2018 03:00:09 -0500 Thanks so much Kevin! I am so glad to have found this group. I hope to learn a lot from all of you. Glad to hear everything went well with your injection today–look forward to hearing more…

In reply to - patricia-hall became a registered member ]]> 7d9ce1ee01d8023700945a2695ebc48f patricia-hall became a registered member https://smanewstoday.com/forums/activity/p/2500/ Tue, 04 Sep 2018 16:58:30 -0500 9