@phall
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Patricia Hall replied to the topic Colonoscopy -Yikes! in the forum Adults With SMA 2 months, 2 weeks ago
Thanks Dennis – this is helpful to know and I appreciate you sharing your experience with this procedure. I am hoping to get a second opinion from a gastroenterologist that might be willing to consider other screening alternatives. I’ve heard there is a special CT scan that some doctors use, so maybe I can find other options.
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Patricia Hall started the topic Colonoscopy -Yikes! in the forum Adults With SMA 2 months, 3 weeks ago
I recently started having some G.I. issues, and now my gastroenterologist insists that the next step is a colonoscopy! I am wondering if any of you have had this procedure and if so, hoping you will share your experience. I have heard that the prep is awful, but in addition, I am very concerned about having to be sedated. I do plan to discuss with…[Read more]
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Patricia Hall replied to the topic Spinraza & Medicare Coverage in the forum Adults With SMA 1 year, 9 months ago
This is great news!
I was told that Medicaid does cover it, but had not been able to get a definitive answer from Medicare.
I have had several setbacks and much hesitation about moving forward with Spinraza. Hopefully, I can now proceed with the treatment. -
Patricia Hall started the topic Spinraza & Medicare Coverage in the forum Adults With SMA 1 year, 9 months ago
Hello everyone , hope you’re enjoying the weekend!
I have been approved for Spinraza by my private insurance. However, it will run out in November, at which time I will be eligible for Medicare. Before beginning, I want to be sure that future treatment will be paid for by my health plan. Do any of you know if Medicare covers Spinraza? I have c…[Read more] -
Patricia Hall started the topic Bathroom Safety: Shower Chairs in the forum Adults With SMA 2 years, 5 months ago
Happy New Year! Hope 2019 is off to a great start for you!
I am seeking recommendations on finding a company to build a “custom-made” shower chair. We recently renovated our bathroom and my previous bathing system no longer works well. I have contacted several local providers and explored many medical equipment companies online, but all the…[Read more] -
Patricia Hall joined the group
Research and Development 2 years, 6 months ago -
Patricia Hall joined the group
SMA Patients 2 years, 8 months ago -
Patricia Hall posted a new activity comment 2 years, 8 months ago
Hi Kevin,
Thank you so much for reaching out to me. Sorry for my delayed response, I celebrated my 56 birthday this past week, and am just now getting back into my usual routine with checking messages. I have enjoyed the forums and found much of the information to be very helpful. There are many topics that I continue to search and hoping to find…[Read more]
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Happy belated birthday!
And absolutely. All of these topics would be great for discussion, and thanks for the suggestions. The great thing about the forums is that all of us here are different ages and we have different backgrounds. Feel free to post these topics.
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Patricia Hall and
Mike Huddleston are now friends 2 years, 9 months ago -
Patricia Hall changed their profile picture 2 years, 9 months ago
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Patricia Hall changed their profile picture 2 years, 9 months ago
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Patricia Hall changed their profile picture 2 years, 9 months ago
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Patricia Hall changed their profile picture 2 years, 9 months ago
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Patricia Hall changed their profile picture 2 years, 9 months ago
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Patricia Hall changed their profile picture 2 years, 9 months ago
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Kevin Schaefer and
Patricia Hall are now friends 2 years, 9 months ago -
Patricia Hall posted a new activity comment 2 years, 9 months ago
Thank you Ryan! Looking forward to connecting–
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Patricia Hall posted a new activity comment 2 years, 9 months ago
Thanks so much Kevin! I am so glad to have found this group. I hope to learn a lot from all of you. Glad to hear everything went well with your injection today–look forward to hearing more…
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Well we’re glad to have you here!
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Patricia Hall became a registered member 2 years, 9 months ago
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Hey Patricia, welcome! I’m Kevin Schaefer, one of the forum moderators. I also have type II. Feel free to introduce yourself in the welcome forum, and let me know if you have any questions. Thanks for joining us!
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Thanks so much Kevin! I am so glad to have found this group. I hope to learn a lot from all of you. Glad to hear everything went well with your injection today–look forward to hearing more…
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Well we’re glad to have you here!
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Hey Patricia! Good to hear from you! My name’s Ryan, and I have SMA type ll. See you around!
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Thank you Ryan! Looking forward to connecting–
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Hello Patricia and welcome!
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Hey Patricia, hope you are doing well. I just wanted to check in and see how your experiences have been on the forums so far. Have you found the content and discussions here helpful? Is there anything in particular you’d like to see or discuss related to SMA? We welcome all feedback, and thanks again for joining us here.
-Kevin
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Hi Kevin,
Thank you so much for reaching out to me. Sorry for my delayed response, I celebrated my 56 birthday this past week, and am just now getting back into my usual routine with checking messages. I have enjoyed the forums and found much of the information to be very helpful. There are many topics that I continue to search and hoping to find…[Read more]
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Happy belated birthday!
And absolutely. All of these topics would be great for discussion, and thanks for the suggestions. The great thing about the forums is that all of us here are different ages and we have different backgrounds. Feel free to post these topics.
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