Biography

First diagnosed at the University of Padua Italy in 1977 by Dr. Corrado Angelini. Care thereafter overseen by Dr. Walter Bradley of Tufts, UVM and UM. I was able to get Spinraza in Fort Myers Florida under the care of Dr. Natalie Gillson and the staff at Lee Medical Center. They are wonderful people! In 2021 I moved back to NH to be closer to my family. I was unable to find a Spinraza provider in the area, and Biogen was useless. I now take Evrysdi under the care of Dr. Elijah Stommel, Professor of Neurology at Dartmouth. Genentech is so much easier to work with. And Evrysdi is infinitely more convenient than intrathecal injections!