I went through a rough three year battle with a pressure wound from 2020 to 2023 so I would really love to do something extra this summer. I don’t know if everyone feels like this but travel is just the worst. Flying is almost impossible, I have no issue riding in my car for 15 hours but apparently driving for 15 is pretty terrible so that’s…

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I’m with Alyssa, I have very low expectations when it comes to retail (and restaurants.) They are both meticulously designed to make use of the space they have to put down as much product (or table space) as possible. And to be fair, wheelchair users need a lot of room to be comfortable. The only real expectation that I have is there’s…

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Wow, lots of good suggestions here! I think you already came to this conclusion but I bet you’re already more active in their life than you realize. Just being there for them, especially at sports events and such makes a huge impact. I would also caution you on being to hard on your self, there’s a lot of things you just simply wont be able…

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I think I’m probably the odd man out here but I don’t really look for representation like this nor do I really want it. I represent myself when I’m out and about and I don’t like to be compared to ‘ambassadors’ (if you will) because they are typically acting when they are in some kind of spotlight, they are representing an ideal rather than…

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Hi Deann! Pit Terriers have about a 13 year life span, typically. Marsellus is anything but typical and he still plays like he’s a pup so who knows!

My first adventure on my boat will be to spend the winter cruising the Bahamas and Caribbean then during the spring/summer I’d love to run the Great American Loop, which oddly enough starts in…

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Hi everyone! I’m Rudy, I’m almost 40 years old, have SMA III and currently live in South Dakota. I think I’ve gone through almost all of the trials and tribulations of being a disabled person and a young man so I’m just out here trying to figure out how to transition into being a real adult. I have an American Pitbull Terrier named…

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Hi everyone, I just wanted to add my 2 cents to this thread before I forget. I want to preface this post with the fact that I have SMA III so my cares are probably quite a bit lighter than most people with SMA and that for the majority of my life, my mom has been my primary caregiver. My parents are now retirement age so it’s…

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