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@shinji78

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    Shinji78 replied to the topic To cost vs benefit evaluators in the forum Spinraza 1 year, 5 months ago

    Thanks Alyssa.

    Too bad same story repeats over and over again to many people.

    Thanks for your words

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    Shinji78's profile was updated 1 year, 5 months ago

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    Shinji78 started the topic To cost vs benefit evaluators in the forum Spinraza 1 year, 5 months ago

    Hi all

    My first time using this forum 🙂

    My partner is type III and still able to walk. No long distances, no steep walkways, but walk.

    A couple of years ago we were informed by her neurologist about a potential treatment named ‘Spinraza’. She told us it was under revision and waiting to be approved in the UK. Then it had to be reviewed by the…[Read more]

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    Shinji78 became a registered member 1 year, 5 months ago

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