@shinji78
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Shinji78 replied to the topic To cost vs benefit evaluators in the forum Spinraza 11 months, 1 week ago
Thanks Alyssa.
Too bad same story repeats over and over again to many people.
Thanks for your words
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Shinji78's profile was updated 11 months, 2 weeks ago
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Shinji78 started the topic To cost vs benefit evaluators in the forum Spinraza 11 months, 2 weeks ago
Hi all
My first time using this forum 🙂
My partner is type III and still able to walk. No long distances, no steep walkways, but walk.
A couple of years ago we were informed by her neurologist about a potential treatment named ‘Spinraza’. She told us it was under revision and waiting to be approved in the UK. Then it had to be reviewed by the…[Read more]
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Shinji78 became a registered member 11 months, 2 weeks ago
