-
Shinji78 replied to the topic To cost vs benefit evaluators in the forum Spinraza 1 year, 5 months ago
Thanks Alyssa.
Too bad same story repeats over and over again to many people.
Thanks for your words
-
Shinji78's profile was updated 1 year, 5 months ago
-
Shinji78 started the topic To cost vs benefit evaluators in the forum Spinraza 1 year, 5 months ago
Hi all
My first time using this forum 🙂
My partner is type III and still able to walk. No long distances, no steep walkways, but walk.
A couple of years ago we were informed by her neurologist about a potential treatment named ‘Spinraza’. She told us it was under revision and waiting to be approved in the UK. Then it had to be reviewed by the…[Read more]
-
Shinji78 became a registered member 1 year, 5 months ago