SMA News Today Forums | simone | Activity https://smanewstoday.com/forums/members/sunshine9573/activity/ Activity feed for simone. Sat, 18 Apr 2026 20:06:21 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 5aa70ead4ec95aa6b6b57dffdb75537a simone replied to the discussion How do you de-stress during the holiday season? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/how-do-you-de-stress-during-the-holiday-season/#post-30418 Mon, 19 Dec 2022 23:36:51 -0600 Reply to How do you de-stress during the holiday season?

This is going to sound really bad but my psychiatrist says it’s okay…..I find unique and interesting ways to play Sims 4, I even had a serial killer. Yes, I’m odd LOL

]]> 4d6c40012544117b5ff12a1438aca9aa simone replied to the discussion Do You Have a Spare Chair? in the forum Assistive Technology https://smanewstoday.com/forums/forums/topic/do-you-have-a-spare-chair/#post-30411 Thu, 15 Dec 2022 03:04:57 -0600 Reply to Do You Have a Spare Chair?

No spare at that time, I had just replaced my chair which was really old and I gave it to my sister for parts since had the same model chair.  It was my now husband’s car insurance company that. bought that chair. They rushed the order and we swapped chairs after 3 months.  I had fractured my leg but didn’t want to visit the ER so I told the… Read more

]]> 106e9f131317e70fef8e95441514b53f simone started the discussion Jaco Arm? in the forum Assistive Technology https://smanewstoday.com/forums/forums/topic/jaco-arm/ Mon, 12 Dec 2022 02:41:17 -0600 Jaco Arm?

So, I  have known about the Jaco Arm for about a year and I never realized the huge impact it could have on my life.  I was watching an older stream of Squirmy and Grubs and basically cried my eyes out, how amazing it would be to get my independence back. Does anyone know how I can the process started?

]]> 864d47add2469c9800d570cfa078b4aa simone replied to the discussion Do You Have a Spare Chair? in the forum Assistive Technology https://smanewstoday.com/forums/forums/topic/do-you-have-a-spare-chair/#post-30391 Mon, 12 Dec 2022 02:29:40 -0600 Reply to Do You Have a Spare Chair?

Yes. I always keep my previous chair. The only time I didn’t/couldn’t was 7 years ago. I was in a car accident and the insurance company not only repaired my car but replaced my chair because they said the electronics may have been damaged in the crash. The only requirement was to give them the old one.

]]> 3e376a876efe6eee5c4ac4ec890d28d1 simone replied to the discussion Hi there! in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/hi-there/#post-30390 Sat, 10 Dec 2022 01:11:35 -0600 Reply to Hi there!

Hiya neighbor! Nice to meet you 🙂 Sorry this so late, I spent the morning trying to convince Urgent Care that I don’t have Covid and lost my voice because of laryngitis.  I could’ve saved two hours, so I have been putting it off all week and now I’m trying to get everything done for work so I can enjoy the weekend.

]]> ea0b9291d24780e108479ab9f7d58499 simone replied to the discussion Hi there! in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/hi-there/#post-30389 Sat, 10 Dec 2022 00:50:35 -0600 Reply to Hi there!

I have two boy dogs. Mine is Pomeranian/Sheltie mix, he looks exactly like a red fox. Hubby’s is a beige Wheaten Terrier. Whenever they very quiet, I know they’re up to no good together.

]]> 59c5e22a0d84de31425202e72367c4cd simone replied to the discussion Hi there! in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/hi-there/#post-30388 Sat, 10 Dec 2022 00:39:53 -0600 Reply to Hi there!

Hey Blake,

Nice to meet you. Believe or not, I grew up in sunny South Florida! I don’t mind the cold, I’ve been all over New England and this the furtherest north I have ever lived 🙂

]]> 687aa1086bcf2f49f21ec1cb7ae09d22 Simone changed their profile picture https://smanewstoday.com/forums/activity/p/15905/ Tue, 06 Dec 2022 22:07:36 -0600 0 211a6a424a69501d344b5cb7a55e4efd simone started the discussion Hi there! in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/hi-there/ Tue, 06 Dec 2022 21:52:48 -0600 Hi there!

Hi everyone,

I recently joined and thought I should introduce myself. My name is Simone, I have SMA Type 2 and I currently live in New Hampshire with my husband, Mike of 1 year and our 2 furbabies, Elijah and Chomps. My hope is to make friends with other SMA patients.

]]> ce687e1d3855091375a6f44bbcfcd3a2 simone updated their profile https://smanewstoday.com/forums/activity/p/15886/ Tue, 06 Dec 2022 03:32:23 -0600 0 61866416983157a0b45e30dd359ff973 simone became a registered member https://smanewstoday.com/forums/activity/p/15867/ Mon, 05 Dec 2022 14:49:31 -0600 1