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  • Todd started the topic Introduction in the forum SMA Forums Welcome Lounge 2 years ago

    Hi, my name is Todd, I am the father of an 18 month little boy whom has SMA II.  I am blessed to be his caregiver, and everyday brings some type of new joy to my life.  I truly am a better person by having the privilege to care for Aleksander, my son.  We live outside the Pensacola Florida area.  Thank you

  • Todd changed their profile picture 2 years ago

  • It is a difficult decision to have to be faced with.  My son has SMA II.  He was set to receive Spinraza on a friday morning, his first dose, back in August of this year, and the Doctor had to cancel the procedure due to a personal issue.  He was brought into the STRONG study that very same day.  Strange how things occur in this world.  Ho…[Read more]

  • Todd became a registered member 2 years ago

    • Hey Todd, welcome and happy holidays! I’m Kevin Schaefer, one of the forum moderators. Please let me know if you have any questions, and feel free to introduce yourself in the welcome forum. Also I see in your profile that your son has type 2. I’m Type 2 as well, and I’m happy to answer any questions you have about growing up with SMA. Thank…[Read more]

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